Parenting Children with Allergy
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(2) ǡ Ǣ ǡ
(3) ǡ. . . . ʹͲͳͳ. ͳ.
(4)
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(6) ͻͺǦͻͳǦͶͷǦͷͻ͵ǦͶ ̹ ǡʹͲͳͳ ǡ Printed by. . . 2011. Gårdsvägen 4, 169 70 Solna. ʹ.
(7) . Abstract. ǣ ȋͳȌǤ ǫ ȋʹȌǤ ǫ Ǥ ǡ Ǥ Study I ǡ why Ǥ Ǧ Ǥʹͳͷȋͻ͵ΨȌ ǡ ͳͻ ȋͺͷ ΨȌ Ǥ ǡ ͳͷ ȋͺ ΨȌ Ǧǡ Ǥ Ǧ ǡ ǯ ǤStudyII ǯ Ǥ ǯ ǡ Ǥ ǡ ǯǤ ǡ Ǧ Ǥ In study III ǡ ǡ Dzdz Ȃwhenhow ȋ ȌǤ ǯ ǡ Ǥ Ǧ ǡ Ǥ Ǧ Ǥ Ǥ
(8) ǤStudyIVǡǡ Ǥ Ǥ . ͵.
(9) ȋ ȌǤ ǯ Ǥ
(10) ǯ ǡ Dzdzǡ Ǥ ǡ Dzdz ǡ Ǥǯ Ǧ ǯǢ Ǥ
(11) ǡ ǡ Ǧ ǡǤǤDzdzǤ Keywords: ǡ ǡ ǡ ǡ ǡ ǡ ǡ ǡ ǡ ǡ ǡǡ . . . Ͷ.
(12) Listofpublications ǣ
(13) Ǥ ǡ Ǥǡ ǡ Ǥǡ ǡ Ǥǡ ǡ Ǥ Ƭ Úǡ Ǥ ȋʹͲͲͷȌ Ǧ Ǧ ǤScandinavianJournalofCaringSciencesǡͳͻǤͳǦ
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(15) Ǥ ǡ Ƭ ±ǡ Ǧ ȋʹͲͲͻȌ Dzdz Ǥ ǯ ǯ Ǥ Health:An InterdisciplinaryJournalfortheSocialStudyofHealth,IllnessandMedicineǡ ͳ͵ ȋʹȌ ǤͳͷǦͳͶǤ
(16)
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(18) Ǥ ǡ ǤǤǡ ǡ Ǥ Ƭ ±ǡ ǦǤ Mothers’ accounts of healthcareencounters: Negotiating culpabilityand fulfilling theactive mother roleǤ Ǥ
(19) Ǥ ǡǤǤǡ ±ǡǦǤǡǡǤƬ ǡ ǤParentssupportforan ordinary life for their allergic child: managing family relations and controlling informationǤǤ . . . ͷ.
(20) Dz ǡǡǡ ǡ Ǥdz ȋǤ
(21) Ǥ Ǥ Ȍ . . . .
(22) . Contents . Prologue. . . PARTONE . . 9. . . ͻ. . 1.Introduction Thegenderedpracticeofparenting . Allergyasachildhooddisease. . 13 13 . 13. . . . Parentalconceptualisationsofallergy . . . ͳ 17 18 ͳͻ. . Dzdz . ʹͳ ʹͳ ʹʹ. . . . 2.Methodology . Medicaldefinitionsofallergy Foodallergydiagnosis Diseasespecificaspectofchildhoodallergy. 13 14 15. Strategiesofnormalisingasthmaandallergy. Dzdz . . . . . ʹͲ. . 23. ǣ 6DPSOLQJSURFHGXUHDQGVWXG\SDUWLFLSDQWV . StudyI:Theschoolchildpopulationandparentalsubjects StudyIIǦIV:Samplingdecisionsinnarrativeinterviews StudyIII:Classificationsofmothers’socialclass . . . . . StudyI:Thestructuredtelephoneinterviews StudyIIǦIV: Narrativeinterviews Whynarrativeinterviews? Theopeningquestionanddatacollectionprocedure. . ʹͶ 24. 25 26. ʹ 27 ʹͺ 28 28. . . . . ʹͻ. . . . . ͵ʹ. . . 35. . StudyI:Statisticalanalysis StudyIIǦIII:Reconstructingchronological‘realtime’storylines StudyIIIǦIV:Narrativeaccountsenactingandshapingsociallife. 3.Summaryoftheempiricalstudies .
(23) ǣ ͵ͷ
(24)
(25) ǣDzdz ͵
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(28) ǣ ͵
(29) ǣ ͵ͺ. 4.Concludingdiscussion . 29 30 31. . . . ȋͳȌ ȋʹȌ ȋ͵Ȍ . 41 Ͷͳ Ͷͳ Ͷʹ.
(30) . ȋͶȌ ȋͷȌǮ ǯ. . Ͷ͵ ͶͶ.
(31) . . . Ͷͷ Ͷ. Methodandfindingsmutuallyreinforcedinnarrativeaccounts Anoteonsocialclassexplanation . 46 47. . Acknowledgment References . . . . . . 49. . . . . 53. PARTTWO PapersIǦIV . . . ͺ.
(32) PARTONE Prologue
(33) Ǥ Ǥ Ǥ . ‘Ithink,amongotherthings,thesonwhohashadthemostallergies,heisgoingtobethe one who is outdoors and travels abroad the most. That is what I try to give my child in quietknowledge;youcanaslongasyouwantto,likeitisnoproblem.Thereisnothingthat canpreventyoujustbecauseyouhavethisallergy,itisjustthattherearesomethings,you can think like this, for example, just because you have peanut allergy you can’t travel to Indonesiabecausetheretheyliveonlyoncoconutandpeanuts,soIsay,ifyougothere,you canfixitanyway.It’slike,thatismine,alifeapproach.Itrytoraisemysoninapositivelife approachwithhishandicap’. ‘Itcangrowout,butitshouldhavehappenedbynow,sheisjust8andahalfyearsoldsoit issurelyhardforthesurroundingtounderstand.Itissoeasytogivethechildrenthisor that. Still though, milk allergy is the most common. But I have always with me, things, when it is field trips or such, then I say, you can’t give this away and exchange with someone else. Then I make my special food, fruit goes well to exchange. When I make sandwiches and things, she always wants ham, it has to be cucumbers and suchǦ don’t exchangethisnowbecausemaybe(child’sname)can’teatit.Andthenthegrownupscan wonder, why can’t you have it. And so the whole time you have to inform, she’s not supposedtoeatthat.It’salittledifficultsometimes’. Ǯǯ Ǥ Ǣ Ǥ Ǥǡǡ ǯ Ǥ ǣ ǮI try to raise my son in (having) a positive life approach to his handicapǯǤǡǦ ǡ ȋ ȌǤ ǡ ȋ ȌǡȀ ǡ ǡ Ǥ
(34) ǡǯ ǯǡ Ǥ . ͻ.
(35) Ǥ
(36) ǡ ǡ Ǥ
(37) ǡ Ǥ Ǥ
(38) ǯ ǡ Ǥ ǡ ǡ ǯǡ ǯ Ǥ ǡ ǡǮǯǡǤ
(39) ǯ ǡǮ ǯ Ǥ Ǥ ǯ ȋ Ȍ ǯ ǡ Ǥ ȋ Ȍ Ǥ ǡ Ǥ
(40) ǡ ǯ ǡ ǡ Ǥ Ǥ
(41) ǡ ȋȌ Ǥ ȋȌǦǦ Ǥ ǯǤ ǯǡǮǯǤ Ǥǯǡ ǡ Ǯǯǡ ǯ Ǯǯ ǯǤ . . ͳͲ.
(42) ǯ ǯ Ǥ ǡ ǡ ǡ Ǥ ǯǤ ǡ ǡ ǡ ǡ Ǥ
(43) ǡǡ ȋ Ȍ Ǥ. . . ͳͳ.
(44) . ͳʹ.
(45) 1.Introduction Thegenderedpracticeofparenting ǡ ǯ ȋǦ Ƭ ʹͲͲͳǢ ͳͻͻͻȌǤ ȋǦ Ƭ ʹͲͲͳǢ Ǥ ʹͲͲ͵Ǣ ʹͲͲǢ ʹͲͲǢͳͻͻͻȌǤ Ǧ ǡ ȋ ʹͲͲͷȌǤ ǡ Ǣ ȋ Ȍǡ ǡ ǡ ǡ Ǥ
(46) ǡ Ǥ ǡǡ ǡ ǯ ȋ ǤʹͲͲͲȌǤ ǡ
(47) Ǥ ǣ ǤǦȋʹͲͲͲǡ ʹͲͲ͵ȌǢ ȋͳͻͻȌ Ǣ ȋʹͲͲͷǡ ʹͲͲȌ ǢǡǦƬȋʹͲͲͳȌȋͳͻͻͻȌ Ǥ ǤȋʹͲͲ͵Ȍ ǡ Ǥ ǡǮǯ Ǥ
(48) ǯ Ǥ ǡ ȋȌ Ǥ . Allergyasachildhooddisease Medicaldefinitionsofallergy
(49) ǡ ǡǡ Ȁ ȋ Ǥ ʹͲͲͳȌǤ ǯ ǡ ȋ ͳͻͻͺȌǤ Ǧ . ͳ͵.
(50) ǡ ǡ
(51) Ǥ Ǥ ǯ ǯ Ǧ Ǥ Ǧ Ǣ ǡ Ǧ ȋ Ƭ ʹͲͲȌǤ ǯ ȋ ͳͻͻͻȌǤ ǡ Ǧ ǯǯ Ǥ Ǥ ȋʹͲͲͶȌǡ ǡ ȋ
(52) Ȍ Ǧ Ǥ. Foodallergydiagnosis ǡ Ǥ ǡ ǡ ǡ ǡ ȋǤͳͻͻͻȌǤ
(53) ǡ ȋǤǤ Ǧ Ȍ ǯȋƬʹͲͲʹȌǤ ǡ ǡ ǡ ǯ Ǥ ǡ ǡ ǡ Ǥ Ǥ ǡ ǡ Ǯǯ Ǥ Ǯǯ ǡ ǣDz dzǤ ǡ Ǯ ǯ Ǥ Ǥ ǡ . ͳͶ.
(54) ǡ Ǥ ǡ Ǯǯ ǡ Ǯǯ Ǥ. Diseasespecificaspectofchildhoodallergy. ǡ Ǧ ǡ ǯ ǡǡ ȋ ʹͲͲͲȌǤ ǡ ȋʹͲͲͶȌ ǯ ǯǤ Ǥ
(55)
(56) ǯ ǯ ǡ ǡǤ
(57) ǯ ǡ ǯ Ǥ ǡ ȋʹͲͲͶȌ ǡ Ǥ Ǥ Ǣ ǡ Ǯ ǯ ȋ Ȍ Ǥ ǡ ʹͲͲ͵ ȋ ƬʹͲͲ͵ȌǤ Ǥ ǡ ǡ ǡ ȋ ʹͲͲͶǢ ʹͲͲǢ ʹͲͲʹȌǤ ǡ ǯǤ Ǯ ǯǤ ǡ ǯ Ǥ ȋ Ȍ ȋǤǤȌǡ ǡ ȋ ʹͲͲͲǢ
(58) Ǥ ʹͲͲͳȌǤ ǡ ǣ ǡ ǡǡ Ǥ . ͳͷ.
(59)
(60) ǡ Ǥ
(61) Ȁȋ ʹͲͲͶȌǤ Ǥ ǡ ǡ ǡ ǡ ǯ Ȁ Ǥ ǡ ǡ ȋʹͲͲͶȌǤ ǡ ǡ ȋ ʹͲͲʹǢǦǤʹͲͲͷȌǤ ǡ Ǥǡ ȋǦǤʹͲͲͷȌǤ ǡ Ǥ ǡ
(62) Ǥ ǡ ǡ Ǧ ȋȌ ȋ Ǥ ʹͲͳͲȌǤ ǯ ǡ ǡ Ǥ Ȁǡ ǡ ȋǡ Ȍǡ ȋʹͲͲͶǢ ʹͲͲʹȌǤ ǯ Ǣ ȋ ȌǤ
(63) ǡ ȋ ʹͲͲʹȌǤ ǡ Ǥ ǡȋ Ȍ Ǥ ȋǡ Ǧ Ȍǡ Ǥ
(64) ǡ Ǥ Ǥ ǯ ǯ ǡ Ǥ . . ͳ.
(65) ǡ Ǥ Ǣ ȋ ͳͻͻʹȌǤ ǡ Ǥ Ǥǡ ǡ Ǥ . Thelivedeverydayexperiencesofasthmaandallergy. ǡ ǡ ǡ ǡ Ǥ Ǣǡ ǡ Ǥ ǡ Ǥ ǡ ǡǦ Ǥ ǡ ǡǯǡ ǡ Ǥ. . ǡ ȋͳͻͺͶǢͳͻͻͶȌǡ Ǥ ȋ Ȍ ȋ ͳͻͻͶǢ ͳͻͻȌǤ ǡ ǡ ȋ ±ƬͳͻͻͻȌǤ. ǯ ǡ ǯ ǯ ȋ ͳͻͻ͵ǢͳͻͻȌǤ Ǣ ǡ Ǧ ǡ ȋ ͳͻͻͳǡ ͳͻͻǢ Ǥ ʹͲͲͲȌǤ . Parentalconceptualisationsofallergy.
(66) ǡ ȋʹͲͲͶȌ ǯ ǯ ȋ. . ͳ.
(67) ʹͲͲͶǢʹͲͲȌǤ ǯDzdzȋ ʹͲͲͶǢʹͲͲȌǡǡ ǡ ǡ ǡ ȋʹͲͲͶǢʹͲͲȌǤǡ ȋ ʹͲͲͶȌǤǯ they coulddo ǯȋʹͲͲȌǤ ǡ ǯ ȋ ʹͲͲͶȌǡ ǯ Ǥ ǯ ǡ Ǥ Ǥ ǡ ȋ ȌǤ Dz dz Ǥ ǡ Ǥ Ǧ ǡ ȋʹͲͲͶȌǤ. Strategiesofnormalisingasthmaandallergy
(68) Ǧ Ǧ ǡ ȋͳͻͻͶǢͳͻͻȌǤadaptations ǡ ȋͳͻͺʹǢͳͻͻ͵ȌǤ ǡ ǡ ǡ normalisationȋ ͳͻͻ͵ǢǤͳͻͻǢͳͻͻǢ ǤͳͻͻͻǢ Ǧ ǤʹͲͲʹǢʹͲͲȌǤ Ǥ ȋͳͻͻͻȌ ǡ Ǥ
(69) Ǯǯ ǡ Ǥ ǡ ȋǤͳͻͻͻȌǤ ǡ ordinariness ȋ Ǥ ͳͻͻͻȌǤ Ǥ Ǥ . ͳͺ.
(70) ǯ ǯ Ǥ ǡȋʹͲͲȌ Ǥ ǡ ǯǤ. ǯ ȋ ͳͻͻͶȌǤ ȋǤͳͻͻǢ Ǧ ǤʹͲͲʹȌǤ Ǥ
(71) ǡ ǦǤ
(72) ǡ ȋʹͲͲȌ ȋͳͷǦ͵Ͳ Ȍ Ǥ ǯ Ǥ ǡ ǡ Ǥ . Allergyasaculturaldiseasehighlightingindividualrisk Ȁ Ǥ Ƭ ȋʹͲͲ͵Ȍ culturaldise Ǥ sickness ǡ ȋͳͻͻȌ ȋ Ȍ ȋ ȌǤ Ƭ ȋʹͲͲ͵Ȍ ȋȌ ȋȌ ǡ ȋ ͳͻͻʹȌǤ
(73) ǡ ȋ Ȍ Ǯǯ ȋ ǯȌ ȋ Ƭ ʹͲͲ͵ȌǤ ǡ ǡ ǯ ǮǯǤ ǡ Ǯǯ Ǥ ǡ Ǥ ǡ . . ͳͻ.
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