Postal address Visiting address Telephone E-Mail Karolinska Institutet
171 77 Stockholm SWEDEN
Tomtebodavägen 18A Stockholm
+46-8-524 80 000, switch marie.chenik@ki.se Web
ki.se Org. number 202100 2973
Bevakning av ny information om bioetik med fokus på hälso- och sjukvårdsetik.
Juli 2021.
Research och sammanställning görs av Marie Chenik. Bevakningen är resultatet av ett ideellt arbete som startade juni 2016.
Ett nyhetsbrev skickas en gång/vecka till prenumeranter. Varje månad publiceras sammanställningen av nyhetsbreven på:
https://ki.se/lime/etik-i-praktiken Synpunkter och förslag välkomnas och skickas till marie.chenik@ki.se Se fler nyheter på Smer BIOETIKNYTT: http://www.smer.se/
Vecka 30
Stella Cizinsky, överläkare och verksamhetschef, Universitetssjukhuset Örebro har skrivit en recension om en ny bok: Sjukvård är humanism. Marknadstänkandet har tagit över av läkaren Magnus G Lind. Ett manifest för den professionella logiken och etiken (lakartidningen.se)
David Ojalvo, ST-Läkare, Vårdcentralen Wisby Söder. Var ligger gränsen mellan valfrihet och rasism? (lakartidningen.se)
Aktuell granskning visar att läkare med utländsk bakgrund diskrimineras. Vårdgivare sa ja till önskemål om »etnisk svensk« läkare (lakartidningen.se)
Det saknas rättsligt stöd för att besluta om ett generellt besöksförbud inom den frivilliga hälso- och sjukvården. JO-beslut
Mickey Trockel, Christine Sinsky, Colin P. West, Liselotte N. Dyrbye, Michael Tutty, Lindsey Carlasare, Hanhan Wang, Tait Shanafelt. Self-valuation Challenges in the Culture and Practice of Medicine and Physician Well-being. Mayo Clinic Proceedings.
2021. https://www.sciencedirect.com/science/article/pii/S0025619621000513
Paula A Rochon, Surbhi Kalia, Paul Higgs. Gendered ageism: addressing discrimination based on age and sex. The Lancet. 2021.
https://doi.org/10.1016/S0140-6736(21)01636-6.
Stephanie Solomon Cargill, Andrea Eidsvik, Marilyn Lamm. Updating the ethical guidance for gene and cell therapy research participation. Molecular Therapy. 2021. https://www.sciencedirect.com/science/article/pii/S1525001621003634
Mazor J. On the Child’s Right to Bodily Integrity: When Is the Right Infringed? The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, Volume 46, Issue 4, August 2021, Pages 451–465. https://doi.org/10.1093/jmp/jhab013
Free online course “Research in global health emergencies: ethical issues”. The Global Health Network in collaboration with The Nuffield Council on Bioethics. Research in global health emergencies: Ethical issues • Global Health Training Centre (tghn.org)
University of Bristol. The spring school for methods and methodology in empirical bioethics will be held in Amsterdam from 4th- 7thApril 2022. Further information on this event will be anounced separatedly.
Keisha Ray, PhD. “We Are Not Here to Save Bioethics:” Amplifying Diverse Voices in Bioethics | Bioethics.net
Nakazawa, E., Yamamoto, K., London, A.J. et al. Solitary death and new lifestyles during and after COVID-19: wearable devices and public health ethics. BMC Med Ethics 22, 89 (2021). https://doi.org/10.1186/s12910-021-00657-9
Turbitt, E. et al. Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities. Ethics & Human Research, 43: 27-36. https://doi.org/10.1002/eahr.500097
Vecka 29
En del av filosofers yrkeskunskap går ut på att identifiera fenomenen och sätta ord på dem, och det borde vi fått mer av under pandemin, skriver Per Sandin. Så har pandemin visat att filosofer bör axla rollen som rådgivare - Del B (dn.se)
Linjen har varit att det är lockdown-länder, där även mindre barn hållits borta från skolorna, som nu betalar ett högt pris i form av psykisk ohälsa. Men de svenska barn som drabbats av postcovid berättar en annan historia, skriver Lisa Bjurwald. Pandemins obekväma offer - Dagens Arena
Läs mer: Barnombudsmannens rapport. barnombudsmannens-rapport---covid-19-pandemins-konsekvenser-for-barn-slutredovisning- av-regeringsuppdrag_.pdf
Samtal med Ole Petter Ottersen, Karolinska Institutet samt tidigare läkarstudenten Natte Hillerberg, ST-läkare och Simon Isaksson, Sveriges Radios reporter i New York. Borde Karolinska Institutets salar byta namn? - P1-morgon | Sveriges Radio Läs mer: Beslut kring användandet av namnet Retzius på KI väntas i höst (lakartidningen.se)
Mörkt kapitel i KI:s historia – en utgångspunkt för debatt om vår värdegrund - Ole Petter Ottersen, president Karolinska Institutet Medicinhistoriska och etiska aspekter på historiska minnesmärken och samlingar på Karolinska Institutet - Ole Petter Ottersen, president Karolinska Institutet (ki.se)
IVO. Vårdcentral missade livshotande blodproppar. Närhälsan lex Maria-anmäler händelse - Dagens Medicin
IVO. Vårdbeslut var otydliga och det fanns risker för patientsäkerheten. Vårdcentral får kritik av Ivo för behandlingsbegränsningar (lakartidningen.se)
Consciousness and complexity: theoretical challenges for a practically useful idea - The Ethics Blog (uu.se)
Clinicians and policymakers need to start asking tough questions following aducanumab's approval. Mildred Salomon president of The Hastings Center, a bioethics research institute. The Stakes of an FDA Probe on New Alzheimer's Drug | MedPage Today
Park J, Saha S, Chee B, Taylor J, Beach MC. Physician Use of Stigmatizing Language in Patient Medical Records. JAMA Netw Open. 2021;4(7):e2117052. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2781937
Hospitals are required to provide medical interpreters free of charge to patients who don’t speak English, but with increased demand and reduced supply of interpreters during the pandemic, many hospitals have cut corners, providing incomplete or subpar professional medical interpretation to the patients who need it. Covid Doesn’t Justify Cutting Corners on Medical Interpretation - The Hastings Center
It is crucial that COVID-19 Certificates and Vaccine Passports are not designed, implemented nor used as a privilege and should not infringe freedom of choice, but rather as a way to create an epidemiologically safer environment for everyone. UNESCO’s ethics commissions call to address ethical issues of COVID-19 certificates
Trisha Greenhalgh. Moral uncertainty: A case study of Covid-19. Patient Education and Counseling.
https://doi.org/10.1016/j.pec.2021.07.022
(…) the absence of sustained ethical discourse at the level of government has created fundamental challenges to establishing how responsibility should be understood-practically, and as a matter of principle. Personal responsibility versus legal obligation? Why simplistic binaries make for bad pandemic responses - The Nuffield Council on Bioethics (nuffieldbioethics.org)
Survey for practitioners who work with older people - The Nuffield Council on Bioethics (nuffieldbioethics.org) Health technologies and the future of ageing: survey for practitioners who work with older people (office.com)
Jennifer Dobson. Invisible Illness and Measurability | Journal of Ethics | American Medical Association (ama-assn.org)
Dorothy Wall, MA. AMA J Ethics. 2021;23(7):E590-595. The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19 | Journal of Ethics | American Medical Association (ama-assn.org)
Lorettu, L., Nivoli, A.M.A., Daga, I. et al. Six things to know about the homicides of doctors: a review of 30 years from Italy. BMC Public Health 21, 1318 (2021). https://doi.org/10.1186/s12889-021-11404-5
Grauman, Å., Hansson, M., James, S. et al. Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey. Patient (2021). https://doi.org/10.1007/s40271-021-00512-4
Phillips, A., Borry, P., Van Hoyweghen, I. et al. Disclosure of genetic information to family members: a systematic review of normative documents. Genet Med (2021). https://doi.org/10.1038/s41436-021-01248-0
WHO issues new recommendations on human genome editing for the advancement of public health New Regulation for Organ Procurement Will Improve Equity and Save Lives - The Hastings Center Report on ethicists as activists. Hastings Center Report: Vol 51, No 4 (wiley.com)
van Beinum A, Murphy N, Weijer C, et al. Family experiences with non-therapeutic research on dying patients in the intensive care unit. Journal of Medical Ethics Published Online First: 14 July 2021. doi: https://jme.bmj.com/content/early/2021/07/14/medethics- 2021-107311
Bliamptis J, Barnhill A. Physician perspectives on placebo ethics. Journal of Medical Ethics Published Online First: 13 July 2021.
https://jme.bmj.com/content/early/2021/07/12/medethics-2021-107446
Vecka 28
”Sjukvården behöver en storstädning”. Stella Cizinsky, Mats Alvesson. https://www.svd.se/sjukvarden-behover-en-storstadning Så försvann integriteten inom svensk vård. Fia Ewald. https://dagensarena.se/essa/hur-integriteten-forsvann-inim-svensk-vard
Bortprioriterad omvårdnad medför ökat lidande, ökade kostnader för samhället, förlängt behov av sjukvård och ökad risk för död, skriver debattörer från Svensk sjuksköterskeförening. https://dagensmedicin.se/opinion/debatt/att-prioritera-bort-omvardnad-kan-vara- livsfarligt/
Forskning: För mycket empati kan vara skadligt | SvD
Ivo: Brister i vården av äldre i början av pandemin (lakartidningen.se) Medicin utan mänsklighet (lakartidningen.se)
De Marco, G., Douglas, T. & Savulescu, J. Healthcare. Responsibility and Golden Opportunities. Ethic Theory Moral Prac (2021).
https://doi.org/10.1007/s10677-021-10208-1
Joyeeta G. Dastidar. When Imaging Data Contradict a Patient’s Self-report, How Should Clinicians Proceed? AMA J Ethics. 2021;23(7):E524-529. doi: 10.1001/amajethics.2021.524.
Wendrich-van Dael A, Gilissen J, Van Humbeeck L, et al. Advance care planning in nursing homes: new conversation and
documentation tools. BMJ Supportive & Palliative Care Published Online First: 23 June 2021. doi: 10.1136/bmjspcare-2021-003008.
Michael Certo. Quality of Life? Suffering? Covid-19 Intensifies Challenges in Discussing Life-Sustaining Treatment.
https://www.thehastingscenter.org/quality-of-life-suffering-covid-19-intesifies-challenges-in-discussing-life-sustaining-treatment/
Vecka 26 + 27
Region Skåne ska granska fler journaler där äldre fått beslut om behandlingsbegränsningar. Alla vårdcentraler uppmanas också gå igenom de samordnade individuella vårdplaner som gjorts under pandemin.
Skåne granskar individuella vårdplaner på vårdcentralerna (lakartidningen.se) Streaming- och podjättar nobbar det medieetiska systemet | SVT Nyheter Covid-19 gav stor överdödlighet på särskilda boenden (umu.se)
Excess Mortality After COVID-19 in Swedish Long-Term Care Facilities. Marcel Ballin, Jonathan Bergman, Miia Kivipelto, Anna Nordström, Peter Nordström. Journal of the American Medical Directors Association. DOI: 10.1016/j.jamda.2021.06.010
Max Williams Religion & Ethics Editor. The ethical questions raised by COVID-19 vaccines: 5 essential reads (theconversation.com)
Zachary Obinna Enumah, Joseph Carrese, Chun Woo Choi. The Ethics of Extracorporeal Membrane Oxygenation: Revisiting the Principles of Clinical Bioethics. The Annals of Thoracic Surgery. Volume 112, Issue 1, 2021, Pages 61-66.
https://doi.org/10.1016/j.athoracsur.2020.08.045
Chen DT, Shepherd L, Taylor J, et al. Who will receive the last ventilator: why COVID-19 policies should not prioritise healthcare workers. Journal of Medical Ethics Published Online First: 25 June 2021. doi: 10.1136/medethics-2021-107248. Who will receive the last ventilator: why COVID-19 policies should not prioritise healthcare workers | Journal of Medical Ethics (bmj.com)
The WHO guidance on Ethics & Governance of Artificial Intelligence for Health (28 june 2021) is the product of eighteen months of deliberation amongst leading experts in ethics, digital technology, law, human rights, as well as experts from Ministries of
Health. Ethics and governance of artificial intelligence for health (who.int)
