Adults with Spina bifida
– voices from everyday life and
exploration of living conditions
HANNA GABRIELSSON
Medical Science with a specialisation in Healthcare Sciences
Örebro Studies in Medicine 225 I ÖREBRO 2020
2020
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hanna gabrielsson, graduated as a registered nurse 2006, from Ersta Sköndal Bräcke University College, Sweden, where she also continued her educational training and graduated as Master of Sciences in Nursing in 2012. Hanna has worked as a nurse, and coordinator of the mmc-team, at the Spinalis Outpatient Clinic at Aleris Rehab Station (previously Rehab Station Stockholm), and as a lecturer at Ersta Sköndal Bräcke University College. The latter is her current workplace. In 2016 Hanna registered as a PhD-student at Örebro University.
This thesis involve adult persons with Spina bifida. Spina bifida is a congenital spinal cord malformation which entails physical disabilities and cognitive im-pairment of varying degree. As the number of adults living with Spina bifida is increasing, it is important to improve knowledge about this population’s health and living conditions, by mapping these and their situated lived ex-periences in everyday life through active community engagement. This was done by a combination of quantitative and qualitative methods, including the participatory method photovoice. This thesis adds knowledge about adult persons with Spina bifida and their experiences of everyday life.
issn 1652-4063 isbn 978-91-7529-361-5
