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FÖRSLAG TILL FÖRBÄTTRINGSARBETE OCH KUNSKAPSUTVECKLING

BILAGA 1 DATABASSÖKNING

Cinahl 19-11-18

Sökning Sökord Sökresultat

Sökblock 1: Allvarlig psykisk sjukdom

S1 ”Severe mental illness” 2392

S2 ”Severe mental disorder” 91

S3 (MH "Schizophrenia") 22319

S4 Schizophrenia 28791

S5 (MH "Psychotic Disorders") 10594

S6 "psychotic disorder*" 11792

S7 ”Major depression” 59312

S8 “Major depressive disorder” 6391

S9 (MH "Bipolar Disorder") 10660

S10 “Bipolar disorder” 12746

S11 S1 OR S2 OR S3 OR S4 OR S5 OR S6

OR S7 OR S8 OR S9 OR S10 106033

Sökblock 2: Hälsofrämjande åtgärder

S12 (MH "Health Promotion") 58823 S13 ”health promotion” 67101 S14 ”lifestyle intervention” 2052 S15 “lifestyle changes” 3118 S16 ”health-enhancing” 432 S17 S12 OR S13 OR S14 OR S15 OR S16 71959 Sökblock 3: Upplevelser S18 (MH "Patient Attitudes") 41030 S19 experience* 378518 S20 “lived experience*” 6608 S21 incentive* 14999 S22 facilitator* 11890 S23 barrier* 79074 S24 obstacle* 10711 S25 challenge* 162138 S26 S18 OR S19 OR S20 OR S21 OR S22 OR S23 OR S24 OR S25 617083 Kombinerad sökning S27 S11 AND S17 AND S26 228

S28 Filter: Academic Journals 207

30

PubMed 19-11-18

Sökning Sökord Sökresultat

Sökblock 1: Allvarlig psykisk sjukdom

S1 ”Severe mental illness” 4043

S2 ”Severe mental disorder” 411

S3 "Schizophrenia"[Mesh] 102457

S4 Schizophrenia 140341

S5 "Psychotic Disorders"[Mesh] 50840

S6 “psychotic disorder*” 2973

S7 "Depressive Disorder, Major"[Mesh] 28770

S8 ”major depression” 23265

S9 “major depressive disorder” 38930

S10 "Bipolar Disorder"[Mesh] 39378

S11 ”bipolar disorder” 48128

S12 S1 OR S2 OR S3 OR S4 OR S5 OR S6

OR S7 OR S8 OR S9 OR S10 OR S11 255296

Sökblock 2: Hälsofrämjande åtgärder

S13 "Health Promotion"[Mesh] 74311 S14 ”health promotion” 108879 S15 ”lifestyle intervention” 4059 S16 “lifestyle changes” 6232 S17 ”health-enhancing” 783 S18 S13 OR S14 OR S15 OR S16 OR S17 121149 Sökblock 3: Upplevelser S19 “patient attitude*” 153 S20 experience* 1023147 S21 “lived experience*” 3536 S22 incentive* 33460 S23 facilitator* 24205 S24 barrier* 293302 S25 obstacle* 45589 S26 challenge* 613820 S27 S19 OR S20 OR S21 OR S22 OR S23 OR S24 OR S25 OR S26 1908199 Kombinerad sökning S28 S12 AND S18 AND S27 190

S29 Filter: Journal Article 189

31

PsycINFO 19-11-18

Sökning Sökord Sökresultat

Sökblock 1: Allvarlig psykisk sjukdom

S1 ”Severe mental illness” 5009

S2 ”Severe mental disorder” 374

S3 MAINSUBJECT.EXACT("Schizophrenia") 95484 S4 Schizophrenia 144207 S5 "psychotic disorder*" 28239 S6 MAINSUBJECT.EXACT("Major Depression") 118572 S7 ”major depression” 125069

S8 “major depressive disorder” 20133

S9 MAINSUBJECT.EXACT("Bipolar

Disorder") 34167

S10 ”Bipolar disorder” 39656

S11 S1 OR S2 OR S3 OR S4 OR S5 OR S6 OR

S7 OR S8 OR S9 OR S10 298888

Sökblock 2: Hälsofrämjande åtgärder

S12 MAINSUBJECT.EXACT("Health Promotion") 32294 S13 ”health promotion” 50068 S14 ”lifestyle intervention” 913 S15 “lifestyle changes” 2514 S16 ”health-enhancing” 512 S17 S12 OR S13 OR S14 OR S15 OR S16 53053 Sökblock 3: Upplevelser S18 MAINSUBJECT.EXACT("Client Attitudes") 16578 S19 experience* 654843 S20 “lived experience*” 13425 S21 incentive* 21039 S22 facilitator* 14365 S23 barrier* 71368 S24 obstacle* 19099 S25 challenge* 203334 S26 S18 OR S19 OR S20 OR S21 OR S22 OR S23 OR S24 OR S25 900250 Kombinerad sökning S27 S11 AND S17 AND S26 437

S28 Filter: Scholarly Journals 389

32

BILAGA 2 – ARTIKELMATRIS

Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Aschbrenner K, Carpenter-Song E, Mueser K, Kinney A, Pratt S, Bartels S A Qualitative Study of Social Facilitators and Barriers to Health Behavior Change Among Persons with Serious Mental Illness. 2013

USA

To explore social

facilitators and barriers to health behavior change in persons with serious mental illness engaged in a healthy lifestyle program for persons with serious mental illness.

Focus group discussions Thematic analysis

30 participants

participating in a healthy lifestyle program (In SHAPE) within

community-based mental health settings

Severe mental illness, (schizophrenia or schizoaffective disorder 73 %, 22)

Women 15, men 15 Mean age 48.23 (SD 8.2)

Four themes were identified:

Emotional Support, Practical Support, Mutual Support and Unhealthy Social Environment.

High quality Strengths: Clear structure

Results clearly presented Study limitations considered Weaknesses:

Unclear description of the diagnoses of participants, except

schizophrenia/schizoaffective disorder

Lack of presentation of the relationship between the researchers and the participants Chen M-D, I J-H,

Pellegrini C A, Tang T- C, Kuo C-C

A qualitative exploration of

facilitators and barriers to physical activity participation in people with severe mental illness in Taiwan 2017

Taiwan

To identify major

facilitators and barriers to physical activity

participation in Taiwanese with severe mental illness.

Funnel-based focus group interviews

Thematic analysis

39 participants recruited from two hospital-based and three community-based mental health centers Schizophrenia (33), major depression disorder (3), bipolar disorder (3) Women 20, men 19 Mean age of 42 (SD 11)

Five facilitators and five barriers were identified. The facilitators included: Motivation by the

health benefits of physical activity, Engagement in preferred types of activity, Support from family and friends, Encouragement from health professionals and Convenient access to exercise equipment and facilities. The barriers included: Poor health, Low self-efficacy, Low support from family and friends, Fear of negative societal attitudes toward mental illness and Unsupportive physical environment.

High quality Strengths: Clear structure

Recruitment continued until data saturation was reached Use of external experts to confirm the credibility of the data

Study limitations considered Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

33 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Forsberg K-A, Lindqvist O, Björkman T N, Sandlund M, Sandman P O.

Meanings of participating in a lifestyle programme for persons with psychiatric disabilities. 2011 Sweden To illuminate meanings of participating in a lifestyle programme as experienced by persons with psychiatric disabilities. Interviews Analysed using a phenomenological hermeneutic approach 11 participants living in supported housing facilities Schizophrenia (10),

depressive syndrome (1) Women 6, men 5

Age 31-64

Four themes were identified: My

health can be improved, The daily life is partially given a changed content, An increased sense of closeness and equality with the staff and Becoming aware of the life situation.

High quality Strengths: Clear structure

Detailed description of the setting

Detailed description of the data analysis

Extended ethical considerations Study limitations were

considered in detail Weaknesses:

Lack of presentation of the relationship between the researchers and the participants Jimenez D E, Thomas L,

Bartels S J

The role of serious mental illness in

motivation, participation and adoption of health behavior change among obese/sedentary Latino adults.

2019 USA

To identify the role of severe mental illness in motivation, participation, and adoption of health behavior change among overweight Latino adults.

Semi-structured interviews

Thematic analysis

20 participants, a purposive sample of Latinos living in the Boston metropolitan area Major depression (3), bipolar disorder (2), schizoaffective disorder (10), schizophrenia (5) Women 9, men 11 Mean age of 40.3 (SD = 10.4)

Two domains were identified:

Negative Impact including the

themes Symptoms of SMI and

Medication Side effects. Positive Impact including the themes Structure, Getting out of the House and Psychoeducation and Support.

Medium quality Strengths:

Study limitations considered Results clearly presented Weakness:

Brief description of data collection and analysis Unclear process of recruitment Lack of presentation of the relationship between the researchers and the participants

34 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Lundström S, Hedman Ahlström B, Jormfeldt H, Eriksson H, Skärsäter I

The Meaning of the Lived Experience of Lifestyle Changes for People with Severe Mental Illness. 2017

Sweden

To elucidate the meaning of the lived experience of lifestyle changes as perceived by people with severe mental illness.

Narrative interviews Analysed using a phenomenological hermeneutic approach 10 participants recruited from three psychiatric outpatient clinics Schizophrenia or other psychotic disorder Women 3, men 7 Age 28-61

Three themes and eight subthemes were identified: Struggling with inner and outer

limitations including the

subthemes Feelings of

powerlessness and Feelings of doubt. On one's own but together with others including the

subthemes Finding the inner

strength, Feelings of being capable and Being in

companionship. Longing for a life in harmony including the

subthemes Striving for wellbeing,

Seeking balance and Needing to be patient.

High quality Strengths:

Extended ethical reflection Detailed description of data collection and analysis Results clearly presented Study limitations considered The preunderstanding of the authors' were considered Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

Okoli C T C, El- Mallakh P, Seng S Which Types of Tobacco Treatment Interventions Work for People with

Schizophrenia? Provider and Mental Health Consumer Perspectives. 2019

USA

To obtain provider and mental health consumer perspectives on effective, desirable, applicable, and acceptable components of tobacco treatment for people with schizophrenia and other psychotic disorders.

Mixed method For the qualitative data: Semi-structured interviews Content analysis and theme identification 18 participants recruited from inpatient and outpatient mental health facilities

Schizophrenia and other psychotic disorder (12), tobacco treatment providers (6) of which the latter were excluded in the analysis of this literature review

Five themes and nine subthemes were identified: Format of

interventions. Components of intervention including the

subthemes Education,

Counseling, Social support and Pharmacotherapy. Intervention delivery approach including the

subthemes Rolling enrollment

with long-term support, Targeting or tailoring

approaches, Having a recovery orientation, Gradual smoking reduction and Role modeling.

Medium quality Strengths: Clear structure

Extended ethical reflection concerning consent to participate

Study limitations considered Results clearly presented Use of method triangulation Weaknesses:

Shortages in the description of the recruitment process, context and demographic data

Lack of presentation of the relationship between the researchers and the participants

35 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Park T, Foster K, Usher K

Participants' Voices From Within a Healthy Lifestyle Group 2017

Australia

To explore the experience of people with schizophrenia participating in a healthy lifestyle program. Interviews Thematic content analysis

10 participants who had completed a healthy lifestyle program Schizophrenia (10) Women 8, Men 2 Age 30-65

Four themes were identified:

Learning to make healthy choices, Recognising the

importance of exercise for weight management, Accessing support from a health professional and Being a part of a group.

High quality Strengths: Clear structure

Extended ethical considerations Participants received plain language participant information

Data saturation was reached Weaknesses:

Brief presentation of data analysis

Lack of presentation of the relationship between the researchers and the participants Study limitations not

considered Rastad C, Martin C,

Åsenlöf P

Barriers, benefits, and strategies for physical activity in patients with schizophrenia.

2014 Sweden

The aim was to study perception of barriers to and incentives for physical activity in daily living in patients with schizophrenia as reported by the patients themselves. Semi structured interviews Qualitative content analysis 20 participants, a purposeful sample from three psychiatric outpatient clinics

Schizophrenia (18),

schizoaffective disorder (2) Women 7, men 13

Age 22–63

Three main themes were identified: Barriers - Factors

That Complicate or Obstruct Physical Activity, Reward - The Motivation for Being Physically Active and Helpful Strategies.

The themes included 11

categories and 41 subcategories.

High quality Strengths:

Detailed description of data collection and analysis Discussion of trustworthiness Authors' background and preunderstanding is presented and discussed in relation to its effect on data collection and analysis

Detailed description of participants

Results clearly presented Study limitations considered Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

36 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Roberts S H & Bailey J E

An ethnographic study of the incentives and barriers to lifestyle interventions for people with severe mental illness.

2013

United Kingdom

To explore incentives and barriers to an educational lifestyle intervention for people with severe mental illness. Participant observations and in-depth interviews Thematic analysis 8 participants, mental health service users in a community mental health setting Schizophrenia (7), personality disorder (1) Women 2, Men 6 Age: 24-66

Five themes were identified:

Weight management, Social networking, Information and Communication, Role of healthcare professionals and Perceived benefits.

High quality Strengths:

The relationship between the researchers and participants was thoroughly discussed Detailed presentation of the data analysis

Study limitations considered Weakness:

Unclarity in the presentation of results due to the heavy use of references in said category Small sample of participants Shor R & Shalev A

Identifying Barriers to Improving the Wellness of Persons With Severe Mental Illness in Community Residential Mental Health Facilities. 2013

Israel

To learn about the subjective perception of the participants of the barriers to advance their wellness

Interviews - open- ended and semi- structured questions, short questionnaires, audio-taped group sessions Analysed using grounded theory as a guiding framework. 84 participants living in semi-independent housing programs with support from staff Schizophrenia (59), bipolar disorder (13), depression (12) Women 44, men 40 Age 19-69

Barriers identified were

Biological-Related Barriers, Psychological-Related Barriers, Social-Related Barriers and also Organizational-Related Barriers

and Broader Systemic-Related

Barriers.

Medium quality Strengths:

The research assistants, who were also consumers,

confirmed the classification of the themes and categories Three sources of data collection Results clearly presented Large sample

Weaknesses:

Lacked definition of SMI and diagnoses of the population Brief description of analysis Study limitations not considered

Lack of presentation of the relationship between the researchers and the participants

37 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Sims-Gould J, Vazirian S, Li N, Remick R, Khan K Jump step - A community based participatory approach to physical activity & mental wellness 2017

Canada

To explore the factors that facilitate and impede engagement in physical activity for individuals with a mood disorder.

Interviews. Participatory research by peer researchers Thematic analysis 24 participants recruited via (1) posters in the waiting area of the Mood Disorders Association of BC (MDABC), the psychiatric services areas of major hospitals, areas visible to potential volunteers within related service organizations, (2) advertisement on websites and messages via list- servers of related service organizations, (3) word-of- mouth at the MDABC and other service agencies, (4) messages in social media Major Depression Disorder (18), Bipolar II depression (6)

Women 16, men 8 Age 20-75

Three main themes and eight subthemes were identified:

Facilitators and barriers to physical and mental health

including the subthemes

Facilitators and Barriers. Personal strategies to improve health and quality of life

including the subthemes Getting

out of the home/house, Building a routine/structure in daily life, Connecting with nature. Features of an ideal physical activity program including the

subthemes Peer support, Varied

activities and Intensity, duration, time, cost.

High quality Strengths: Clear structure

Use of peer researchers with the same inclusion criteria as study participants in interviews and data analysis to decrease the power differential between researchers and participants Study limitations considered Weaknesses:

Vague presentation of the results Yarborough B J H, Stumbo S P, Cavese J A, Yarborough M T, Green C A Patient perspectives on how living with a mental illness affects making and maintaining healthy lifestyle changes. 2019

USA

To understand the ways that mental health symptoms interfere with achieving health goals

Interviews using a structured interview guide with semi- structured and open-ended follow up questions. A questionnaire was completed by the participants prior to the interviews. Thematic analysis 163 participants recruited from Kaiser Permanente Northwest and from federally qualified health center and eight safety net community health clinics Schizophrenia spectrum disorders (44), bipolar disorder (54), major depressive disorder (40), or anxiety disorders (25) Women 87, men 76 Age: 19-87

Three themes on barriers to making healthy lifestyle changes were identified: Thinking about

making lifestyle changes is overwhelming for individuals already managing the burdens of mental illnesses, Depression makes it difficult to care about a healthy future and When mental illness symptoms are not adequately treated unhealthy behaviors that provide relief are unlikely to be discontinued.

High quality Strengths:

Authors were actively seeking disconfirming quotes

Results clearly presented Study limitations considered Two sources of data collection Large sample

Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

38 Authors, Title, Year,

Country Aim Method Population/diagnosis Main findings Study Quality

Yarborough B J H, Stumbo S P, Yarborough M T, Young T J, Green C A Improving Lifestyle Interventions for People With Serious Mental Illnesses: Qualitative Results From the STRIDE Study 2016

USA

To understand the factors that facilitate or hinder lifestyle changes for individuals with serious mental illnesses in order to improve the development of future interventions. Qualitative interviews Thematic analysis 84 participants recruited from the STRIDE weight loss and lifestyle-change program Schizophrenia or schizoaffective disorder (34), bipolar disorder (17), affective psychoses (31), PTSD (2) Women 54, men 30 Mean age 48.1 (SD 10.1)

Twelve detailed themes were identified including topics related to side-effects of psychiatric medications, unsupportive environment, the pleasant taste of unhealthy food, bad weather, positive attention related to weight loss, depressive symptoms that interfere, lack of motivation, the importance of friends, accountability to the group, group support, learning about nutrition, importance of facilitators such as camaraderie and structured support.

High quality Strengths: Clear structure

Data triangulation was used Study limitations considered Clear presentation of

implications for practice Large sample

Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

Wärdig R E, Bachrach- Lindström M, Foldemo A, Lindström T, Hultsjö S Prerequisites for a healthy lifestyle— Experiences of persons with psychosis. 2013 Sweden To explore prerequisites for a healthy lifestyle as described by individuals diagnosed with psychosis.

Interviews Conventional content analysis

40 participants, care recipients in outpatient settings who had undergone a lifestyle intervention based on a model inspired by cognitive therapy Schizophrenia (13), schizoaffective disorder (13), bipolar disorder (8), delusional disorder (3), unspecified psychosis (3) Women 19, men 21 Age 27-66

Two categories were identified:

Individual prerequisites

including the subcategories Stuck

in Planning, Mental State, Motivation, Knowledge and Structure. Being a part of society

including the subcategories

Striving Towards a Normal and Healthy Lifestyle, Daily Life Finances, Continuous Social Support.

High quality Strengths: Clear structure

Data collection and analysis clearly described

Results clearly presented Study limitations considered Authors' preunderstanding considered

Weaknesses:

Lack of presentation of the relationship between the researchers and the participants

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