Delaktighet i träning
9.2 Förslag på fortsatt forskning
Vid IBD hos barn och ungdomar, utifrån egenskapen av livslång sjukdom och resultatet vår litteraturstudie, ser vi ett behov av ökad kunskap om fysisk aktivitet och träning och dess betydelse för hälsa. Dessutom sedermera öka kunskapen om
såväl medicinska- som omvårdnadsinsatser med syfte att främja en aktiv livsstil hos barn och ungdomar med IBD.
Referenslista
*Artiklar inkluderade i resultatet
Amil-Dias, J., Kolacek, S., Turner, D., Paerregaard, A., Rintala, R., Afzal, N. A., … Kolho, K. (2017). Surgical Management of Crohns Disease in Children Guidelines From the Paediatric IBD Porto Group of ESPGHAN. Journal of Pediatric
Gastroenterology and Nutrition. 64(5), 818-835. doi:
10.1097/MPG.0000000000001562
Bergström, E. (2012). Ungdomsmedicin. Hanséus, K., Lagercrantz, H., Lindberg, T.
(red), Barnmedicin (s.131-139). Lund: Studentlitteratur.
Birimberg-Schwarz, L., Zucker, DM., Akriv, A., Cucchiara, S., Cameron, FL., Wilson, DC., … Turner, D. (2017). Development and Validation of Diagnostic Criteria for IBD Subtypes Nutrition, 11(6). doi: 10.1097/MPG.0000000000002548.
Brooks, A. J., Norman, P., Peach, E. J., Ryder, A., Scott, A. J., Narula, P., Corfe, B.
M Including IBD-unclassified in children: a Multicentre Study From the Pediatric IBD Porto Group of ESPGHAN. J Crohns Colitis, 1;11(9), 1078-1084. doi: 10.
1093/ecco-jcc/jjx053.
Bramuzzo, M., De Carlo, C., Arrigo, S., Pavanello, P. M., Canaletti, C., Giudici, F.,
… Barbi, E. (2019). Parental Psychological Factors and Quality of Life of Children with Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology and ., Lobo, A. J., Rowse, G., (2019). Prospectiv Study of Psychological Morbidity and Illness Perceptions in Young People With Inflammatory Bowel Disease. Journal of Crohn´s and Colitis, 13(8):1003-1011. doi: 10.1093/ecco-jcc/jjz028.
Butwicka, A., Olén, O., Larsson, H., Halfvarson, J., Almqvist, C., Lichtenstein, P.,
… Ludvigsson, J. F. (2019). Association of Childhood-Onset Inflammatory Bowel Disease With Risk of Psychiatric Disorders and Suicide Attempt. Jama Pediatric, 8(19). doi: 10.1001/jamapediatrics.2019.2662.
Carlsson, S. & Eiman, M. (2003). Evidensbaserad omvårdnad – studiematrial för undervisning inom projektet ”Evidensbaserad omvårdnad – ett samarbete mellan Universitetssjukhus MAS och Malmö högskola”. (Rapport nr 2). Malmö: Hälsa och samhälle, Malmö högskola.
Dahlberg, K., & Segesten, K. (2010). Hälsa och vårdande i teori och praxis.
Stockholm: Natur & Kultur.
Diedren, K., Haverman, L., Grootenhuis, M. A., Kindermann, A. (2018). Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic. Journal of Pediatric Gastroenterology and Nutrition, 66(4). 630-636.
doi: 10.1097/MPG.0000000000001756.
Engels, M., Cross, R. K., Long, M.D. (2018). Exercise in patients with
inflammatory bowel disease: current perspectives. Clin exp Gastroenteral 11(11), 1–11. doi 10.2147/CEG.S120816.
Folkhälsomyndigheten. (2019). Skolbarns hälsovanor i Sverige 2017/18 - grundrapport. Hämtad 2019-11-06 från
https://www.folkhalsomyndigheten.se/publicerat-material/publikationsarkiv/b/barns-och-ungas-rorelsemonster/?pub=60058
FYSS. (2016a). Biologiska effekter av fysisk aktivitet. Hämtad 2019-11-07 från
http://www.fyss.se/wp-content/uploads/2017/09/Biologiska_effekter_av_FA_FINAL_2016-12.pdf
FYSS. (2016b). Fysisk aktivitet vid Reumatoid Artrit. Hämtad 2019-11-07 från http://www.fyss.se/wp-content/uploads/2018/01/Reumatoid-artrit.pdf
Gamwell, K. L., Baudino, M. N., Bakula, D. M., Sharkey, C. M., Roberts, C. M., Grunow, J. E., ... Chaney, J. M. (2018). Perceived Illness Stigma, Thwarted Belongingness , and Depressive Symptoms in Youth Inflammatory Bowel Disease (IBD). Inflammatory Bowel diseases, 24(5), 960-965.
https://doi.org/10.1093/ibd/izy011
Gatt, K., Schembri, J., Katsanos, KH., Christodoulou, D., Karmiris, K., Kopylov, U., … Ellul, P. (2019). Inflammatory bowel disease [IBD] and Physical Activity: A Study on the Impact of Diagnosis on the Level of Exercise Amongst Patients With IBD. J Crons Colitis, 13(6), 686-692. doi: 10.1093/ecco-jcc/jjy214.
*Greenley, R.N., Naftaly, J.P., Walkers, R.J., Kappelman, M.D., Martin, C.F., Schneider, K.L. (2017). Sports Participation in Youth With Inflammatory Bowel Diseases: The Role of Disease Activity and Subjective Physical Health Symptoms.
Inflammatory Bowel Disease, 24(2). 247-253. doi: 10.1093/ibd/izx057.
Hashash, J. G., Binion, D. G. (2017). Exercise and Inflammatory Bowel Disease:
Insights into Etiopathogenesis and Modification of Clinical Course. Gastroenterol.
Clin. North Am., 46(4), 895-905. doi:10. 1016/j.gtc.2017.08.010.
Henricsson, M. (2017). Vetenskaplig teori och metod. Lund; Studentlitteratur.
Herzer, M., Denson, L. A., Baldassano, R. N., Hommel., K. A. (2011). Family functioning and health-related quality of life in adolescents with pediatric
inflammatory bowel disease. European Journal of Gastroenterology & Hepatology, 23(1). 95-100. doi: 10.1097/MEG.0b013e3283417abb.
Hyams, J., Crandall, W., Kugathasan, S., Griffiths, A., Olson, A., Johanns, J., … Baldassano, R. (2007). Induction and maintenance infliximab therapy for the treatment of moderate-to-severe Crohn's disease in children. Gastroenterology, 132(3):863-873. doi: 10.1053/j.gastro.2006.12.003
Jones, J. L., Nguyen, G. C., Benchimol, E. I., Bernstein, C. N., Bitton, A., Kaplan, G. C., … Otley, A. R. The Impact of Inflammatory Bowel disease in Canada 2018:
Quality of Life. Journal of the canadian association of gastroenterology. 2(1): 42-48. Doi: 10.1093/jcag/gwy042-48.
Joosse, m. E., Aardoom, M. A., Kemos, P., Turner, D., Wilson, D. C., Koletzko, S.,
… de Ridder, L. (2018). Malignancy and mortality in paediatric-onset inflammatory bowel disease: a 3-year prospective, multinational study from the paediatric IBD Porto group of ESPGHAN. Aliment Pharmacol Ther (48)5. 523-537.
doi: 10.1111/apt.14893.
Kemp, K., Dibley, L., Chauhan, U., Greveson, K., Jäghult, S., Ashton, K., … Bager, P. (2018). Second N-ECCO Consensus Statements on the European Nursing Roles in Caring for Patients with Crohn´s Disease or Ulcerative Colitis. Journal of Crohn´s and Colitis. 12(7). 760-776. doi:10.1093/ecco-jcc/jjy020
Kluthe, C., Isaac, DM., Hiller, K., Carroll, M., Wine, E., Manen, M., Huynh, H.
(2018). Qualitative Analysis of Pediatric Patient and Caregiver Perspectives After Recent Diagnosis With inflammatory bowel Disease. Journal of Pediatric Nursing, 38.106-113. doi: 10.1016/j.pedn.2017.11.011.
Kristensson, J. (2014). Handbok i uppsatsskrivande och forskningsmetodik för studenter inom hälso-och vårdvetenskap. (1. Utg.) Stockholm: Natur & Kultur.
*Legeret, C., Mählmann, L., Gerber, M., Kalak, N., Köhler, H., Holsboer-Trachsler, E. Brand, S., Furlando, R. (2019). Favorable impact of long-term exercise on disease symptoms in pediatric patients with inflammatory bowel disease. BMC Pediatrics. 19(297). doi: 10.1186/s12887-019-1680-7.
Lindberg, G., & Nyhlin, H. (Red.).(2016). Gastroenterologi och Hepatologi. (1.
Utg.) Lund: Studentlitteratur.
Lindfred, H., Saalman, R., Nilsson, S., Sparud-Lundin, C., Lepp, M. (2012). Self-reported health, selfmanagement and the impact of living with inflammatory bowel disease during adolescence. Journal of Pediatric Nursing, 27(3). 256-264. doi:
10.1016/j.pedn.2011.02.005.
Lindström, C., Aman, J., Norberg, A. L. (2010). Increased prevalence of burnout symptoms in parents of chronically ill children. Acta pediatric, 99(3). 427-432.
doi: 10.1111/j.1651-2227.2009.01586.x. Epub 2009 Nov 12.
Ludvigsson, JF., Busch, K., Olen, O., Askling, J., Smedby, KE., Ekbom, A. … Neovius, M. (2017). Prevalence of paediatric inflammatory bowel disease in Sweden: a nationwide population-based register study. BMC Gastroenterol, 17(1).
Doi 10. 1186/s12876-017-0578-9.
Malmborg, P., Hildebrand, H. (2015). The emerging global epidemic of paediatric inflammatory bowel disease – causes and consequences. Journal of Internal Medicine, 279(3). 241-258. doi: 10.1111/joim.12413
Malmborg, P., Mouratidou, N., Sachs, M. C., Hammar, U., Khalili, H. Neovius, M.,
… Olén, O. (2019). Effects of Childhood-onset Inflammatory Bowel Disease on School Performance: A Nationwide Population-based Cohort Study Using Swedish Health and Educational Registers. Inflamm Bowel Dis, 3(27).
doi:10.1093/ibd/izz040.
*Marchioni Beery, R. M., Li, E., Fishman, L. N. (2019). Impact of pediatric inflammatory bowel disease diagnosis on exercise and sports participation: patient and parent perspectives. World Journal of Gastroenterology. 25(31). 4493-4501.
doi: 10.3748/wjg.v25.i31.4493
Mieli-Vergani, G., Vergani, D., Baumann, U., Czubkowski, P., Debray, D., Dezsofi, A., … Hadzic, N. (2018). Diagnosis and Management of Pediatric Autoimmune Liver Disease: ESPGHAN Hepatology Committee Position Statement. JPGN, 66(2), 345-360. doi: 10.1097/MPG.0000000000001801.
*Mählmann, L., Gerber, m., Furlano, R.I., Legeret, C., Kalak, N., Holsboer-Trachsler, E., Brand, S. (2017). Psychological wellbeing and physical activity in children and adolescents with inflammatory bowel disease compared to healthy controls. BMC Gastroenterology. 17:160. doi 10.1186/s12876-017-0721-7 Naidoo, K., Gordon, M., Fagbemi, A. O., Thomas, A. G., Akobeng, A. K. (2011).
Probiotics for maintenance of remission in ulcerative colitis. Cochrane Systematic Review - Intervention. Version published 07 December 2011.
https://doi.org/10.1002/14651858.CD007443.pub2
Natapoff, J. N. (1978). Children´s views of health: a developmental study. Am J Public Health. 68(10). 995-1000. doi: 10.2105/ajph.68.10.995
Nathan, I. , Norton, C., Czuber-Dochan, W., Forbes, A. (2013). Exercise in Individuals With Inflammatory Bowel Disease, Gastroenterology Nursing. 36(6).
437-442. doi: 10.1097/SGA.0000000000000005
Nicholas, DB., Oatley, A., Smith, C., Avolio, J., Munk, M., Griffiths, AM. (2007).
Challenges and stategies of children and adolescents with inflammatory bowel disease. Health Qual Life Outcomes 5:28. doi 10. 1186/1477-7525-5-28.
Nobile, S., Grand, R. J., Pappa, H. M. (2018). Risk factors for low bone mineral density in pediatric inflammatory bowel disease: the positive role of physical activity. Eur J Gastroenterol Hepatol, 30(1), 471-476.
doi:10.1097/MEG.0000000000001076.
Olén, O., Askling, J., Sachs, M. C., Frumento, P., Neovius, M., Smedby, K. E., … Ludvigsson, J. F. (2019). Increased Mortality of Patients With Childhood-Onset Inflammatory Bowel Diseases, Compared With the General Population.
Gastroenterology, 156(3). 614-622. doi: 10. 1053/j.gastro.2018.10.028.
Pappa, H., Thayu, M., Sylvester, F., Leonard, M., Zemel, B., Gordon, C. (2011).
Skeletal health of children and adolescents with inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 53(1), 11-25. doi:10.1097/MPG.0b013e31821988a3.
*Ploeger, H., Obeid, J., Nguyen, T., Takken, T., Issenman, R., de Greef, M., Timmons, B. (2012). Exercise and Inflammation in pediatric Crohn´s Disease.
International Sports medicine, 33(8). 671-679. doi:10.1055/s-0032-1304323.
*Ploeger, H. E., Takken, T., Wilk, B., Issenman, R. M., Sears, R., Suri, S., Timmons , B.W. (2011). Exercise capacity in pediatric Patients with Inflammatory Bowel Disease. The journal of pediatrics, 158(5). 814-819. doi:
10.1016/j.jpeds.2010.10.020
*Plevinsky, J.M., Wojtowicz, A.A., Poulopoulos, N., Schneider, K. K., Greenley, R.N. (2018). Percieved Impairment in Sports Participation in Adelescents With Inflammatory Bowel Diseases: A preliminary Examination. Journal of pediatric Gastroenterology and Nutrition, 66(1). 79-83. doi:
10.1097/MPG.0000000000001633
Ruemmele, F.M., Veres, G., Kolho, K. L., Griffiths, A., Levine, A., Escher, J. S., … Turner, D. (2014). Consensus guidelines of ECCO/ESPGHAN on the medical management of pediatric Crohn’s disease. J Crohns Colitis, 8(10). 1179-1207. doi:
10.1016/j.crohns.2014.04.005.
Ruemmele, F.M & Turner, D. (2014). Differences in the management of pediatric and adult onset ulcerative colitis–lessons from the joint ECCO and ESPGHAN consensus guidelines for the management of pediatric ulcerative colitis. J Crohns Colitis, 8(1): p. 1-4. doi: 10.1016/j.crohns.2013.10.006
Stapersma, L., van den Brink, G., van der Ende, J., Bodelier, A. G., van Wering, H.
M., Hurkmans, P. C. W. M., … Utens, E. M. W. J. (2019). Illness Perceptions and Depression Are Associated with Health – Health Related Quality of Life in Youth with Inflammatory Bowel Disease. Internatonal of Journal of Behavioral Medicine, 26(4). 415–426. doi, 10.1007/s12529-019-09791-6.
Svenska föreningen för pedriatisk gastroenerologi, hepatologi och nutrition-SPGHN. (2019). IBD-Vårdprogram, Inflammatorisk tarmsjukdom hos barn och ungdomar, version 7,1. Hämtad från http://gastro.barnlakarforeningen.se/wp-content/uploads/sites/10/2019/01/IBD_VP-ver7-1_190117.pdf
Svensk sjuksköterskeförening. Publikation (2010). Indikatorer för hälsofrämjande omvårdnad. Hämtad från https://www.swenurse.se/globalassets/01-svensk- sjukskoterskeforening/publikationer-svensk-sjukskoterskeforening/ssfom-publikationer/om.indikatorer.for.halsoframjande.omvardnad_webb.pdf
Turner, D., Ruemmele, F. M., Orlanski-Meyer, E., Griffiths, A. M., Carpi, J. M., Bronsky, J., … Russel, R. K. (2018). Management of Paediatric Ulcerative Colitis, Part 1: Ambulatory Care- an Evidence-Based Guideline from ECCO and
ESPGHAN. J Pediatr Gastroenterol Nutr, 5(30). doi:
10.1097/MPG.0000000000002035.
Van de Vijver, E., Van Gils, A., Beckers, L., Van de Driesschey, Y., Moes, N. D., van Rheenen, P. F. (2019). Fatigue in children and adolescents with inflammatory bowel disease. Word Journal of Gastroenterology, 25(5).632–643. Doi:
10.3748/wjg.v25.i5.632
Vejzovic, V. (2016). Going trough a colonoscopy and living with inflammatory bowel disease: children's and parents' experiences and evaluation of the bowel cleansing quality prior to colonoscopy. (Doktorsavhandling, Malmö University, Faculty of Health and Society). Hämtad från
http://muep.mau.se/bitstream/2043/20697/2/HS%202016%205%20Vejzovic%20M UEP.pdf:
Vejzovic, V., Bramhagen, AC., Idvall, E., Wennick, A. (2018). Swedish Children's Lived Experience of Ulcerative Colitis, Gastroenterology Nursing, 41(4). 333-340.
doi: 10.1097/SGA.0000000000000295.
Wennström, B., Hallberg, L. R., Bergh, I. (2008). Use of perioperative dialogues with children undergoing day surgery. Journal of Advanced Nursing, 62(1). 96-106.
doi: 10.1111/j.1365-2648.2007.04581.x.
*Werkstetter, K.J., Ullrich, J., Schatz, S.B., Prell, C., Koletzko, B., Koletzko, S.
(2012). Lean Body mass, physical activity and quality of life in pediatric patients with inflammatory boewl disease and in healthy controls. Journal of Crohn´s and Colitis, 6(6). 665-673. doi: 10.1016/j.crohns.2011.11.017
World Health Organization. (2010). Recommended levels of physical activity for adults aged 18-64 years. Hämtad 2020.01.02 från who.int/ncds/prevention/physical-activity/factsheet_adults/en/
World Health Organization. (2011). Recommended levels of physical activity for children aged 5-17 years. Hämtad 2020.01.02 från
who.int/ncds/prevention/physical-activity/factsheet_young_people/en/
YFA. (2016). Rekommendationer om fysisk aktivitet för barn och ungdomar.
Hämtad 2019-11-16 från
http://www.yfa.se/wp-content/uploads/2017/06/Rekommendationerna-barn-ungdom.pdf