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Föräldrarna upplevde många blandade känslor som ångest, sorg, skuld, utmattning, oro och osäkerhet. Föräldrarna upplevde en förändrad vardag med nya prioriteringar.

Omständigheterna skapade bättre familjesammanhållning och ökad tacksamhet för livet.

Föräldrarna hanterade situationen genom att prata med andra föräldrar i samma situation samt ta stöd från anhöriga och vårdpersonal. De valde att fokusera på positiva saker för att bevara livsglädje och lättare finna sig i situationen. Informationssökande och religion användes för att få en förståelse samt hitta mening med situationen.

Referensförteckning

*= Resultatartiklar

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Amaral Bonomo, A., Gragefe, C. K., Valderrama Gerbasi, A. R., Dalva de Barros Carvalho, M., & Biagio Fontes, K. (2015). Religious/spiritual coping in cancer patients under treatment. Journal of Nursing, 3(9), 7539-7546. doi:10.5205/reuol.7049-61452-1-ED.0903supl201506

Antonovsky, A. (1996). The salutogenic model as a theory to guide health promotion. Health Promotion International, 11(1), 11-18. Hämtad från databasen CINAHL Complete.

Antonovsky, A. (2005). Hälsans mysterium (M. Elfstadius, övers.). Stockholm: Natur och Kultur.

(Originalarbete publicerat 1991)

Bartholdson, C., Lûtzén, K., Blomgren, K., & Pergert, P. (2015). Experiences of ethical issues when caring for children with cancer. Cancer Nursing, 38(2), 125-132.

doi:10.1097/NCC.0000000000000130

Blomberg, K., & Sahlberg-Blom, E. (2007). Closeness and distance: A way of handling difficult situations in daily care. Journal of Clinical Nursing. 16(2), 244-254. doi:

10.1111/j.1365-2702.2005.01503.x

*Boman, K., Lindahl, A., & Björk, O. (2003). Disease-related distress in parents of children with cancer at various stages after the time of diagnosis. Acta Oncologica, 42(2), 137-146. doi:10.1080/02841860310004995

Chen, H.-M., Huang, M.-F., Yeh, Y.-C., Huang, W.-H., & Vhen, C.-S. (2015). Effectiveness of coping strategies intervention on caregiver burden among caregivers of elderly patients with dementia. Psychogeriatrics, 15(1), 20-25. doi:10.1111/psyg.12071 Clarke, J. N., & Fletcher, P. (2003). Communication issues faced by parents who have a child

diagnosed with cancer. Journal of Pediatric Oncology Nursing, 20(4), 175-191.

Hämtad från databasen CINAHL Complete.

Di Gangi, S., Naretto, G., Cravero, N., & Livigni, S. (2013). A narrative-based study on communication by family members in intensive care unit. Journal of Critical Care, 28(4), 483-489. doi:10.1016/j.jcrc.2012.11.001

Elgán, C., & Fridlund, B. (2014). Vuxet vardagsliv. I F. Friberg & J. Öhlén (Red.),

Omvårdnadens grunder: Perspektiv och förhållningssätt (2 uppl., s. 127-152). Lund:

Studentlitteratur.

Enskär, K., Carlsson, M., Golsäter, M., Hamrin, E., & Kreuger, A. (1997). Parental reports of changes and challenges that result from parenting a child with cancer. Journal Of

Pediatric Oncology Nursing, 14(3), 156-63. Hämtad från databasen MEDLINE with Full Text.

*Enskär, K., Hamrin, E., Carlsson, M., & von Essen, L. (2011). Swedish mothers and fathers of children with cancer: perceptions of well-being, social life, and quality care.

Journal of Psychosocial Oncology, 29(1), 51-66. doi:10.1080/07347332.2011.534026 Erickson, BM. (2001) Helping men reclaim their ability to feel. Journal of Clinical Activities,

Assignments & Handouts in Psychotherapy Practice, 1(1), 37-45. Hämtad från databasen CINAHL Complete.

Erikson, H.E. (2004). Den fullbordade livscykeln. Stockholm: Natur & Kultur.

*von Essen, L., Sjödén, P. O., & Mattsson, E. (2004). Swedish mothers and fathers of a child diagnosed with cancer: A look at their quality of life. Acta Oncologica, 43(5), 474-479. doi:10.1080/02841860410029348

Fayed, N., Klassen, A.F., Dix, D., Klaassen, R., & Sung, L. (2011). Exploring predictors of optimism among parents of children with cancer. Psycho-Oncology, 20(4), 411-418.

doi:10.1002/pon.1743

*Flury, M., Caflisch, U., Ullmann-Bremi, A., & Spichiger, E. (2011). Experiances of parents with caring for their child after a cancer diagnosis. Journal of Pediatric Oncology Nursing, 28(3), 143-153. doi:10.1177/1043454210378015

Forsberg, C., & Wengström, Y. (2013). Att göra systematiska litteraturstudier. Stockholm:

Natur & Kultur.

Glidden, L.M., Billings, F.J., & Jobe, B.M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949-962. Hämtad från databasen CINAHL Comlete.

Goldbeck, L. (2001). Parental coping with the diagnosis of childhood cancer: Gender effects, dissimilarity within couples, and quality of life. Psyco-Oncology, 10(4), 325-335.

doi:10.1002/pon.530

Han, H.-R., Cho, E. J., Kim, D., & Kim, J. (2008). The report of coping strategies and psychosocial adjustment in Korean mothers of children with cancer. Psycho-Oncology, 18(9), 956-964. doi:10.1002/pon.1514

Holm, K. E., Patterson, J. M., & Gurney, J. G. (2003). Parental involvement and family-centered care in the diagnostic and treatment phases of childhood cancer: Results from a qualitative study.  Journal of Pediatric Oncology Nursing, 20(6), 301-313.

doi:10.1177/1043454203254984

Hunsucker, S., Flannery, J., & Frank, D. (2000). Coping strategies of rural families of

critically ill patients. Journal of the American Academy of Nurse Practitioners, 12(4), 123-127. doi:10.1111/j.1745-7599.2000.tb00291.x

Hälsa (2009). I svensk ordbok: utgiven av Svenska Akademien (s.1260). Stockholm: Norstedt.

Jackson, K. (2005). Att vara förälder till ett för tidigt barn - en prospektiv studie om upplevelsen av föräldraskap och mötet med vården. (Doktorsavhandling, Örebro universitetet, Institutionen för hälsovetenskap och medicin).

*Maurice-Stam, H., Oort, F. J., Last, B. F., & Grootenhuis, M. A. (2007). Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. Psycho-Oncology, 17(5), 448-459.

doi:10.1002/pon.1260

Miedema, B., Hamilton, R., Fortin, P., Easley, J., & Matthews, M. (2010). ‘You can only take so much, and it took everything out of me': coping strategies used by parents of children with cancer. Palliative & Supportive Care, 8(2), 197-206.

doi:10.1017/S1478951510000015

Nicolaou, C., Kouta, C., Papathanasoglou, E., Middleton, N. (2015). Perceived social support among greek-cypriot mothers of children with cancer and mothers of healthy children.

International Journal of Caring Sciences, 8(2), 241-255. Hämtad från databasen CINAHL Complete.

*Ow, R. (2003). Burden of care and childhood cancer: Experiences of parents in Asian context. Health and Social Work, 28(3), 232-240. Hämtad från databasen CINAHL Complete.

Parse, R.R. (2003). Community: a human becoming perspective. Boston: Jones and Bartlett Patistea, E., Makrodimitri, P., & Panteli, V. (2000). Greek parents’reactions, difficulties and

resourses in childhood leukaemia at the time of diagnosis. European Journal of Cancer Care, 9(4), 86-96. Hämtad från databasen CINAHL Complete.

*Patterson, J. M., Holm, K. E., & Gurney, J. G. (2003). The impact of childhood cancer on the family: A qualitative analysis of strains, resources, and coping behaviors. Psycho-Oncology, 13(6), 390-407. doi:10.1002/pon.761

*Popp, J. M., Conway, M., & Pantaleao, A. (2015). Parents experience with their child´s cancer diagnosis: Do hopefulness, family functioning, and preceptions of care matter?

Journal of Pediatric Oncology Nursing, 32(4), 253-260.

doi:10.1177/1043454214563404

Pöder, U., Ljungman, G., & von Essen, L. (2008). Posttraumatic stress disorder among

parents of children on cancer treatment: a longitudinal study. Psycho-Oncology, 17(5), 430-437. doi:10.1002/pon.1263

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Rignér, A. (2013). Information till föräldrar som har barn med cancer. (Doktorsavhandling, Umeå universitet, Instutionen för omvårdnad).

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Salsman, J. M., Pustejovsky, J. E., Jim, H. S. L., Munoz, A, R., Merluzzi, T. V., George, L., Park, C. L., Danhauer, S. C., Sherman, A. C., Snyder, M. A., & Fitchett, G. (2015). A meta-analytic approach to examining the correlation between religion/spirituality and mental health in cancer. Cancer, 121(21), 3769-3778. doi:10.1002/cncr.29350

Samarel, N., Fawcett, J., Krippendorf, K., Piacentio, J. C., Eliasof, B., Hughes, P., Kowitski, C., & Ziegler, E. (1998). Womens perceptions of group support and adaptation to breast cancer. Journal of Advanced Nursning, 28(6), 1259-1268. Hämtad från databasen CINAHL Complete.

*dos Santos Benedetti, G., Garanhani, M. L., & Aparecida Sales, C. (2014). The treatment of childhood cancer: unveiling the experience of parents. Revista Latino-Americana de Enfermagem, 22(3), 425-431. doi:10.1590/0104-1169.3264.2433

*Schweitzer, R., Griffiths, M., & Yates, P. (2012). Parental experience of childhood cancer using interpretative phenomenological analysis. Psychology and Health, 27(6), 704-720. doi:10.1080/08870446.2011.622379

Sulkers, E., Tissing, W. J. E., Brinksma, A., Roodbol, P.F., Kamps, W. A., Stewart, R. E., Sanderman, R., & Fleer, J. (2014). Providing care to a child with cancer: a longitudinal study on the course, predictors, and impact of caregiving stress during the first year after diagnosis. Psycho-Oncology, 24(3), 318-324. doi:10.1002/pon.3652

*Taleghani, F., Fathizadeh, N., & Naseri, N. (2012). The lived experience of parents of children diagnosed with cancer in Iran. European Journal of Cancer Care, 21(3), 340-348. doi:10.1111/j.1365-2354.2011.01307.x

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Vårdguiden 1177. (2015).

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doi:10.1111/j.1365-2702.2006.01297.x

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Östlundh, L. (2012). Informationssökning. I F. Friberg (Red.), Dags för uppsats: vägledning för litteraturbaserade examensarbeten (2. uppl., s. 57 - 79). Lund: Studentlitteratur.

Bilaga 1. Sökmatris

Databas Sökord Antal

träffar

Begränsningar Antal lästa abstrakt

Antal lästa artiklar

Valda artiklar till resultat, se bilaga 2.

Cinahl complete ”Experiences of parents” AND child AND cancer

13st Peer Reviewed Fulltext 2000-2015

5 3 Flury, M., Caflisch, U., Ullmann-Bremi, A.,

& Spichiger, E. (2011), Ow, R. (2003),

Taleghani, F., Fathizadeh, N., & Naseri, N.

(2011).

Cinahl complete ”Parents living” AND ”child with cancer”

2st Peer Reviewed Fulltext 2000-2015

2 1 Al-Gamal, E., & Long, T. (2010).

Cinahl complete Childhood AND cancer AND mother AND fathers

AND quality of life AND experience

4st Peer Reviewed Fulltext

Cinahl complete Diagnosis AND parents AND emotion AND ”children with cancer”

5st Peer Reviewed Fulltext 2000-2015

3 2 Maurice-Stam, H., Oort, F. J., Last, B. F., &

Groothenius, M. A. (2008).

Cinahl complete “Parental experience” AND children AND cancer AND qualitative

2st Peer Reviewed Fulltext 2000-2015

2 2 Schweitzer, R., Griffiths, M., & Yates, P.

(2012).

Cinahl complete “Parents experience” AND Children AND cancer

8 Peer Reviewed

Fulltext 2000-2015

5 5 dos Santos Benedetti, G. M., & Lúcia

Garanhani, M., & Aparecida Sales, C. (2014).

Popp, J. M., Conway, M., & Pantaleao, A.

(2015).

Medline “childhood cancer” AND parents AND experience AND qualitative

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