Word frequency query of transcribed interviews
Master’s Programme in Social Work and Human Rights Degree report 30 higher education credits
Spring 2014
Author: Annika Ekenja
Supervisor: Helena Johansson
Regaining power through construction of identity?
Experience of Multisystemic Therapy from a Youth’s Perspective
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Acknowledgments
Thank you to my supervisor for inspiring discussions and support in the process of this work.
Thank you to the participants of this study. Without your participation it would not have been completed.
Thank you to Emma for giving me access to participants and supporting my research. Thank you also to the different MST teams in Sweden for their cooperation.
Thank you to Kajsa, Magda, Consolée and Tracey for their support, motivation and inspiration.
Thank you to Daniel for your encouragement, your support and just always being there.
Abstract
Literature and studies exist on how to create services in the best interest of the client or how these services have an impact on individuals. They are however mainly from a social work professional stand point and rarely from how clients would develop and create the services that can imply a life change for them. Especially when working with children under 18 years old issues of agency and age that can result in the disregard of the Convention on the Right of the Child (UNCRC). The target group of this study is therefore youth between the ages of 15 to 17 years old in three cities across Sweden to allow them to voice their opinion and experience of being in treatment. Resulting from that is the aim of this study – to investigate how an intensive treatment method like Multisystemic Therapy is described from a client’s point of view. Does the fact of being treated within the social service system influence the client’s self-perception, creation of identity or relationships? Finding out how intervention methods influence the social world and social being of individuals and how this can be used to improve social work practice is in centre. Throughout qualitative interviews with three male persons in Sweden an in-depth understanding had been able to be obtained by a combination of narrative and thematic analysis. Major results had been that the construction of identity is influenced by the fact that they are currently in treatment and even more by the expectations of their surroundings and the society. Even though the treatment process is shaped by power hierarchies the youth had been able to develop own mechanisms to regain power of the identities they were assigned to from outside or society. Interestingly enough the youth described the close relationship with the therapist and the intensive attendance by the social worker through setting up rules for example as positive and guiding for their family life. The findings within this study have an implication on how to further develop the client- social worker relationship in youth and family welfare settings.
Title: Regaining power through construction of identity? – Experience of Multisystemic Therapy from a youth’s perspective.
Author: Annika Ekenja
Key words: construction of identity, power, youth, Multisystemic Therapy, Sweden, Social
Construction.
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Table of contents
Acknowledgments ... i
Abstract ... i
Abbreviations ... iv
1. Introduction ... 1
1.1 Research questions and aim ... 2
1.2 Multisystemic Therapy – a short overview ... 3
2. Recent debate and literature on MST ... 5
2.1 Findings on current research on MST ... 5
2.2 Own conclusion on the Henggeler and Littell dispute and implications for further research ... 6
2.3 Summarising findings of the literature review on MST ... 7
3. Relevant studies and theoretical concepts ... 10
3.1 Origin and different forms of the theoretical concept social construction ... 10
3.2 Construction of ‘clienthood’ in social work ... 12
3.3 Construction of ‘deviant’ identities in social science discourse ... 13
4. Theoretical framework ... 15
4.1 Theories of power relevant in social work ... 15
4.2 Nikolas Rose and the construction of identity ... 18
5. Methodology... 21
5.1 Interviews ... 21
5.2 Sampling and participants ... 22
5.3 Issues of access to participants ... 23
5.4 Limitations and ethical issues ... 23
5.5 Validity, reliability, generalization or how to evaluate qualitative work ... 25
5.6 Method of analysis ... 26
6. Analysis and Findings ... 29
6.1 Terms, definitions and stereotypes ... 29
6.2 Mum & Dad – parents ... 30
6.3 Key words ... 33
6.4 Treatment method ... 35
6.5 Power... 38
6.6 Relationships ... 40
6.7 Self – perception... 43
7. Concluding discussion ... 46
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References ... 50
Appendix 1 – Summary of randomised studies on MST ... 58
Appendix 2 – Interview guide ... 59
Intervjuguide Swedish ... 60
Appendix 3 – Interview request MST team ... 62
Interview request participants ... 66
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Abbreviations
ADHD – Attention Deficit Hyperactivity Disorder APA – American Psychiatric Association
CAQDAS – Computer Assisted Qualitative Data Analysis Software COE – Council of Europe
CYSR – Children and Youth Services Review
DSM – Diagnostic and Statistical Manual of Mental Disorders EBP – Evidence Based Practice
FSRC – Family Services Research Centre
IBSS – International bibliography of the social sciences MST – Multisystemic Therapy
OHCHR – Office of the High Commissioner for Human Rights ProQuest – Social Service Abstracts
TAU – Treatment-as-usual UK – United Kingdom UN – United Nations
UNCRC – United Nations Convention on the Rights of the Child
UNESCO – United Nations Educational, Scientific and Cultural Organization UNODC – United Nations Office on Drugs and Crimes
US – United States
1. Introduction
Having a background and education in social work and practice in Germany as well as working with children and young adults in social services raised a special interest in how clients actually experience what is carefully planned for them. When considering the long and short term impact of the client’s treatment plan, the main ethical and professional concern is how power relations are perceived and interpreted. This dilemma has always been part of the researcher’s practice. Questions that accompanied the researcher’s professional practice where mainly around if what is done is making a difference and how clients can be included more into the decision – making process that is affecting their life.
There is a considerable amount of literature and research regarding how social work professionals perceive the implementation of an intensive treatment method like Multisystemic Therapy (MST) in varying countries as well as in Sweden. The advantages and disadvantages of such high need intervention methods in a Scandinavian context have recently been targeted in research (Gustle, Hansson, Sundell, Andrée-Löfholm, 2008; Sundell, Hansson, Andrée-Löfholm, Olsson, Gustle, Kadesjö, 2008; Andrée-Löfholm, Brännström, Olsson, Hansson, 2013). However, little has been done to investigate how service users who are receiving MST perceive these intervention methods and how they construct and describe relationships outside and inside the treatment. Therefore the overall aim of this study will be to find out through qualitative data collection how social work practice is perceived from a client’s point of view and how this affects other areas of their life. The research objective therefore will be on youth from the age of 15 to 17 years old with so-called ‘antisocial’
behaviour and how they experience an intensive treatment method like Multisystemic Therapy in Sweden.
To this point research in the field of MST is focussing mainly on how Swedish social workers evaluate the method or if it is cost effective (Healy, 2000; Gustle et al, 2008).
Additionally quantitative research is predominant in this field which does not allow an in- depth understanding of complex intervention process. In Sweden MST had been implemented into social welfare practices around 2005. Randomized control trials were conducted with the aim to investigate the transportability of MST to a Swedish context. Findings show that no significant differences in treatment outcomes can be found in comparison to other social services (Gustle et al, 2008).
Researching how young adults who are the target subject of these methods experience them is rarely done. A Dutch study points into a guiding direction by stating that research has to focus more on the experience of the target group itself (Asscher et al, 2013). They note in their results no change in self-esteem for the youth and an increased sense of personal failure appeared during MST treatment. The lack of existing research within the target group might be due to the fact that children or young adults in these interventions are often underage, in precarious and traumatizing situations and difficult to access for research. Due to these ethical concerns the focus will be on the age group 15 to 17 years old since it allows me to access them without consent from parents or others. The advantage of this age group will be to get insights and information from the young adults directly without influence or interference. The issue of pre-selection by professionals still remains since they might chose youth with whom they have a positive contact / relationship. Adding to that the experience of being treated is rarely investigated from a youth’s point of view. Vitus (2014) found in a very recent study that youth want to be more included in decision making processes, want to be respected and the feeling that their opinion has an impact. Finding out how youth in this study perceive equality and power issues will be of special interest therefore.
To be able to fully understand how such an intensive method influences clients self –
awareness and construction of their identity, an investigation from a client’s perspective is
needed. This study aims to investigate the mentioned aspects from three individual’s point of
view in a highly specified context. The extent to how language is used and relationship between client and social worker is constructed will be part of the theoretical and analytical framework. The above mentioned research objectives are important for further developing social work practice towards a more client centred practice and to complement quantitative research for a more in-depth understanding of complex intervention processes. Similar research had recently been done by Tighe et al (2012) to investigate youth and families perception on MST in the UK to improve clinical practice. Following this focus, research is needed on experience of youth in Sweden and how the method influences their self – awareness. This is especially intriguing since studies in Sweden have proved no difference in treatment outcomes when compared to treatment as usual and studies in the UK and The Netherlands show negative effects negative effects on individuals’ relationships. Due to the neglect of current research to address the clients’ point of view regarding the impact of their treatment on familial relationships and self-awareness this research will focus on their view and how the whole treatment process affects their self-awareness.
The first chapter will allow the reader to understand the research questions guiding the data collection and what MST is in general as well as how it can be located within the Swedish context. Since MST as a method was founded in the United States (US) chapter two will include literature about its treatment effectiveness, major findings and disagreements in the US as well as some European countries. Following this will be chapter three where an overview of recent debates within the field of youth and social work is shown. Chapter three is important since it allows an insight; supported by the theoretical concept of social construction, how youth is being constructed in recent literature and what kind of concepts are used to describe the age group. Within chapter four different aspects of theories in social science which build the theoretical framework are being presented. Mainly theories of power and the construction of identity are being investigated since these are most relevant when looking at youth in a social work intervention which is shaped by power imbalances. The theoretical framework in chapter four is supported by theories, concepts and literature in chapter three and together these two chapters will be used as a tool to look at the collected data. Chapter five then explains the methodological approach to access data. Subsequently will be chapter six – a presentation of the analysis and findings within the data set. Here the different nodes that were created within the analysis are being used to structure findings and will be followed by a summary of the most relevant findings in respect to the research questions. The last chapter seven will include a conclusion and discussion of the research. In the appendix the interview guide and the interview request can be found.
1.1 Research questions and aim
The aim of this study is to investigate how social work practice is perceived from a client’s point of view and how this affects other areas of their life. Youth age 15 to 17 years old will be interviewed in Sweden to be able to obtain a client’s point of view and based on that develop social work practice further.
1. How do youth experience an intensive treatment method like Multisystemic Therapy (MST)?
How do they describe being treated / being a client / being ‘antisocial’
from their perspective?
2. How do they construct and describe relationships outside and inside the treatment?
How do they describe the treatment method and how do they position themselves in it?
How can service users’ involvement be understood in this context and
how does it have an influence on social work practice?
1.2 Multisystemic Therapy – a short overview
Multisystemic Therapy is a treatment method that can be located within the category of Evidence – Based Practices (EBP) and has its origins in the United States around Dr. Scott Henggeler. He created the method around the 1990’s in accordance with forming the Family Services Research Centre (FSRC) at the Medical Centre of South Carolina, United States. In 1996 a university licensed organization called MST Service was created to spread the method since it became more and more successful according to the FSRC. To ensure quality and the positive outcomes promoted by Henggeler, MST Services offered help setting up and carrying out MST in different communities and cities in the U.S. resulting in licensed training programs (MST Services, 2014g). Today the MST model is disseminated in the U.S. and most of Western Europe.
MST is an intensive, short – term family – and community-based form of treatment to work on serious antisocial behaviour in youth. The approach targets the multiple needs of serious juvenile offenders and their families to avoid out-of-home placement and addresses the different factors that are related to youth delinquency. According to the method it meets the youth and their families in their natural setting such as schools, family homes or the neighbourhood to support positive social behaviour and avoid negative behaviour. Duration of interventions depend on the individual need of the individual but are never longer than four to six months. Considering that the youth is living in different systems such as their families, school or friends that are interconnected, the approach uses a so called ecological model.
Through that approach, interventions do not only target the child or youth, but also include other systems that can be linked to the antisocial behaviour. MST intervention techniques are empirically-based on cognitive behaviour therapy, behavioural parent training and pragmatic family therapies (MST Services, 2014a). Some of the goals of MST are to provide parents with tools and resources to address challenging behaviour; to decrease criminal activity in youth; to reduce antisocial behaviour; to invoke resources within families, friends and communities to support a long term behavioural change and to be cost effective by decreasing incarceration rates and out-of-home placement (MST Services, 2014b, e).
Due to the fact that MST is “[…] a home-based model of service delivery […]” (MST Services, 2014c) it removes barriers such as transportation, time or location to access services.
Interventions and services include the whole family as well as other influential people and are claimed to be highly individualized to ‘fit’ the family’s needs, strengths as well as weaknesses. Mechanisms to ensure quality and treatment outcomes are a treatment manual created by the developers Henggeler, Schoenwald, Borduin, Rowland and Cunningham themselves; nine treatment principles; supervision and consultation for treatment teams; on- going intensive clinical training for teams and continuously treatment evaluations from different perspectives as well as follow-up evaluation and studies (MST Services, 2014b, d, e). The nine treatment principles are:
- Finding the ‘fit’
- Positive and strength-focused.
- Increasing responsibility.
- Present-focused, action-oriented, & well-defined.
- Targeting sequences.
- Developmentally-appropriate.
- Continuous effort.
- Evaluation and accountability.
- Generalization (MST Services, 2014f).
Further on MST Services states that interventions used in MST are “[…] scientifically-based,
goal-oriented and problem-focused” (MST Services, 2014c).
In Sweden MST is part of the social services agency (Socialtjänsten) and is organised and located within the local city council. Families and youth can either contact MST directly and enquiry for assistance or are referred to it by Socialtjänsten, social workers or teachers. In Sweden there are currently eleven MST teams operating. Sweden signed the UNCRC which influenced the use of a rights perspective within the state’s child welfare policies. Youth and children have the right to good living conditions, health, social and financial security (Office of the High Commissioner for Human Rights (OHCHR), 1990; Council of Europe (COE), 2011). The Swedish Government also adopts the perspective that children and youth should be able to participate and be involved in decisions regarding their lives as well as the environment and society around them. How youth in the end experience involvement in decision making and their own position within their surroundings or society will be investigated in this thesis.
Participation in and assistance by the social services agency is always voluntary to a
certain degree (Janson, 2004). Most welfare services for youth are provided by the public
sector in Sweden. All services offered have to be in the best interest of the child according to
the UNCRC.
2. Recent debate and literature on MST
The purpose of a literature review is to identify and interpret what is known about the research topic up to date. Fink (2010) highlights four key words how a high – quality literature review should be: “[…] systemic, explicit, comprehensive and reproducible […]”
(Fink, 2010: 15). The researcher has to systematically examine all sources that could be of use for the review and clarify explicitly reasons for that. On account of this other researchers will be able to reproduce the methods used. Information should only be extracted from original studies, experiments or observations with a clear study design, explicit research objectives, a distinct research plan, precise data analysis and interpretation (Fink, 2010).
One of the first steps when conducting a literature review is to find out what is exactly needed for the study or research to further develop. The researcher has to be very precise to not just find a vast amount of literature but to be able to identify relevant information. By doing a review the key concepts important to the research questions should be identified and unanswered questions elicited. Four central questions will be answered in this literature review on MST in dependence with Bryman (2012: 98):
- What is known about the experience of youth in MST and how is it used in social work practice?
- What kind of research design is mostly applied to investigate?
- What are main controversies on MST?
- Do inconsistencies exist in findings and are there unanswered questions?
Literature had been obtained through different channels: books, journal articles, databases and current public articles. Three databases were accessed through the library system of Gothenburg University, namely International bibliography of the social sciences (IBSS), Social services abstracts (ProQuest) and the SAGE Handbook of social work research (SAGE knowledge).
Key words used to find articles or books related to the research objectives are:
- Youth* / young adult* / adolescent* / youngster* four different terms will be used because the definitions of how the age group specific to this research is called vary.
- Multisystemic therapy, power, language, “power of language”, social work, Michel Foucault, Nikolas Rose, experience, participation, social construction, perception, clientization, categorization, governmentality, intensive treatment method*, evidence based practice*, service user* involvement.
2.1 Findings on current research on MST
MST as a method and approach had been strongly researched over the past twenty years and is considered as one of the few empirically supported treatments. In fact the United Nations Office on Drugs and Crimes (UNODC) published a list on ‘Evidence-Based Family Skills Training Programmes’ in 2009 where different programmes were reviewed as guidance for policy-makers, Non-Profit Organizations (NPO) and programme managers. They presented different methods in descending order of the level of scientific evidence on which they were based. MST is ranking on place eight out of twenty-four and with that in the first third of the listed effective treatments. Unclear however is, if the UNODC reviewed and cross checked the evidence themselves or if they just based it on the studies and trials provided by MST and others assuming that they were scientifically correct. The level of evidence indicated by the UNODC is four independent randomized control trials, twelve randomized control trials, two quasi experimental studies and two studies based on pre- and post-intervention evaluation (UNODC, 2009:38). This level of evidence is being questioned by researchers around Dr.
Julia H. Littell (2005) in the journal ‘Children and Youth Services Review’ (CYSR). The
CYSR is an interdisciplinary forum for critical scholarship regarding service programmes for
youth and children and had been accessed through the library system of Gothenburg University.
The initial access to the article (‘Lessons from a systemic review of effects of multisystemic therapy’) published by Littell in 2005 had been by key word search of ‘MST’
and ‘multisystem* therapy’. Only peer reviewed articles had been chosen, not older than ten years unless the primary source had been older and in English language. Various articles found through this approach, indicated a critical exchange between Littell (2005&2006) and the developers of MST around Dr. Scott Henggeler (Schoenwald, Borduin, Swenson, 2006).
Littell states in her first article, which had been available online already in December 2004, that a “[…] systemic review of results of controlled studies of the effects of multisystemic therapy (MST) points to inconsistent and incomplete reports on primary outcome studies, important variations in implementation and integrity of randomized experiments, errors of omission […]” (Littell, 2005: 445) and findings that are different from previous reviews. The author based this statement on applying the method of a systemic review according to the work of the Campbell Collaboration
1and revealed in great detail her search methods. The description and definition of a systemic review by the Campbell Collaboration corresponds with other sources such as Bryman (2012). Findings and results are well reasoned, clearly presented and especially point out the conflicts of interest when developers research their own method. In this case it is of special interest because funding for research and MST services is at risk when finding negative results since MST Services is a national corporation. The response by Henggeler et al in 2006 is accordingly. Following this there is one more response by Littell (2006) to Henggeler et al (2006) which ends with the conclusion that MST and EBP have to be open to critical assessment of evidence used and being able to revise and incorporate new findings.
2.2 Own conclusion on the Henggeler and Littell dispute and implications for further research
Being able to read a written and clearly worded dispute on two side of MST had been very useful to get an inside view and first impression into the current discussion on MST and EBP.
It allowed the researcher to get an idea about what studies are important on MST and EBP, and argumentation being used on both sides. Another effect however was, to not invest too much time into figuring out who is right and who isn’t. Who is using more valuable references and are accusations true or not?
Finding out about this dispute early in the research process additionally made clear that a more narrowed down searched on MST had to be done. Three limitations to further research had been applied. First, the key word MST / multisystem* therapy was searched for in connection with Sweden, Norway, United Kingdom (UK) and Netherlands since these are the four European countries where MST had been disseminated and researched early on.
Second, articles and research studies were limited to the date of issue not being older than 2008. Lastly, only literature in English language was used. These decisions were made because the dispute by Henggeler et al and Littell portrayed major studies of the implementation and effectiveness on MST in Norway, Canada and the U.S. and used these extensively to discuss and critique each other. The mentioned studies by Cunningham (2002) in Canada and Ogden & Halliday-Boykins (2004) in Norway for example were acknowledged but are not going to be used in this research. The studies by Cunningham (2002) and Sundell, Hansson, Andrée-Löfholm, Olsson, Gustle and Kadesjö (2008) in Sweden did not replicate
1 “Campbell Systematic Reviews is the peer-reviewed online monograph series of systematic reviews prepared under the editorial control of the Campbell Collaboration. Campbell systematic reviews follow structured guidelines and standards for summarizing the international research evidence on the effects of interventions incrime and justice, education, international development, and social welfare.”
(Retrieved on February 17, 2014 from http://www.campbellcollaboration.org/lib/?go=monograph).
the effectiveness findings of previous studies conducted by Henggeler et al (1992, 1997, and 2002). Whereas the short-term effectiveness study by Ogden & Halliday-Boykins (2004) in Norway displayed similar positive effects of MST compared to TAU (Asscher, Deković, Manders, van der Laan, Prins, 2013; Andrée-Löfholm, Brännström, Olsson, Hansson, 2012).
Part of limiting literature research is that the research objectives of this study focus on youth and their experience and not on the effectiveness of MST in Sweden. Furthermore these studies and trials had been intensively studied, reviewed and critiqued, that the decision was made to focus on more recent literature. Eleven studies met the applied criteria of limitation.
On that account four
2studies were chosen reflecting different aspects of MST and its dissemination in Sweden such as the transportability, cost-effectiveness, practitioner’s view or issues of interpreting MST to treatment-as-usual (TAU). The selection was made based on perceived relevance when looking through abstracts found by the above mentioned key word search. Three
3recent studies from the US and the developers of MST were chosen to allow a comprehensive picture with different perspectives. Four
4more studies conducted in the UK and the Netherlands on implementation and cost-effectiveness were chosen to get a broader picture about the situation in Europe.
Including the Henggeler-Littell dispute all eleven studies reflected four themes: I.
Henggeler-Littell dispute; II. meta-analysis of MST by Curtis, Ronan and Borduin (2004) in the U.S.; III. current studies on MST in a Swedish context and IV. current studies in the UK and Netherlands.
The importance of well investigated and thorough research on a certain phenomenon became apparent when seeing through the current literature on MST and EBP. In the end it comes down to a handful of studies and research trials that other authors refer to and build their research on. Due to this fact the table in a very recent article by Andrée-Löfholm et al (2013:
29) had been used to get an overview on randomised studies on MST. The table includes a summary of studies such as early research done by Henggeler et al (1992 up to 2009), Cunningham (2009), Ogden & Halliday-Boykins (2004) or Sundell et al (2008). It includes information on the research context, country, population, follow-up and description on the comparison group (Appendix 1).
2.3 Summarising findings of the literature review on MST
The findings of all articles considered in the literature review on MST were written down in a mind map to be able to detect similarities and inconsistencies in them. This approach resulted into five main themes listed in descending emergence: treatment fidelity, contextual circumstances, association with deviant peers, cost-effectiveness and impact on relationships.
Treatment fidelity: Across all four themes treatment fidelity is mentioned as the most crucial aspect influencing treatment outcomes. The meta-analysis by Curtis et al (2004) places four demands in their conclusion on how to improve the MST method. Treatment fidelity is mentioned as the first area of improvement since outcome differences in efficiency and effectiveness studies where found. Henggeler et al (2005) state in their comment on Littell (2005) that a conceptual and methodological mistake in her review had been to not take into account what effect treatment fidelity can have on effectiveness outcomes. Gustle et al (2008) then pick up the issues of treatment adherence in their motivation why research has to be done on social work professionals’ views on EBP and MST in Sweden. When looking at the research by Sundell et al (2008) on transportability of MST in Sweden, the importance of treatment fidelity is specifically highlighted in their conclusion.
2 Andrée-Löfholm et al, 2013; Gustle et al, 2008; Sundell et al, 2008; Olsson, 2010.
3 Curtis et al, 2004; Henggeler et al, 2009; Henggeler, 2004.
4 Asscher et al, 2013; Cary et al, 2013; Jansen et al, 2013; Tighe et al, 2012.