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Parent perspectives on early intervention : The paradox of needs and rights

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Mälardalen University

This is a published version of a paper published in British Journal of Developmental

Disabilities.

Citation for the published paper:

Carlhed, C., Björck-Åkesson, E., Granlund, M. (2003)

"Parent perspectives on early intervention: The paradox of needs and rights"

British Journal of Developmental Disabilities, 49(97): 69-80

Access to the published version may require subscription.

Permanent link to this version:

http://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-3954

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Figure 1. Overview of the structure of the results. (conceptions of support from habilitation centres are shadowed)

SUPPORT

INFORMAL

SYSTEMS

FORMAL

SYSTEMS

Support through

other parents

Outside

Habilitation center

Community Other medical organizations

Within

Habilitation center

Parent

organizations Team around the child Organizational factors

A personal encounter The team has an

adjusted

intervention style Turn-overs

A flexibel environment

Empathic ability

To feel security and confidence with

professionals “the liking effect” - it feels right Professionals show interest in the family Get support that you

really want

Family needs are attended Sufficient information Get emotional support Special situation as a “new” parent To find “key-persons” A well functioning ”team” Waiting for an

answer Someone see your need Waiting for

equipment To be seen as competent

Good support from organizations

Support

system

Type of

system

Instances

Conceptions of

support

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Figure

Figure 1. Overview of the structure of the results. (conceptions of support from habilitation centres are shadowed)SUPPORTINFORMAL    SYSTEMSFORMAL  SYSTEMSSupport through other parentsOutsideHabilitation centerCommunity Other medical organizations WithinH

References

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