Mälardalen University
This is a published version of a paper published in British Journal of Developmental
Disabilities.
Citation for the published paper:
Carlhed, C., Björck-Åkesson, E., Granlund, M. (2003)
"Parent perspectives on early intervention: The paradox of needs and rights"
British Journal of Developmental Disabilities, 49(97): 69-80
Access to the published version may require subscription.
Permanent link to this version:
http://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-3954
Figure 1. Overview of the structure of the results. (conceptions of support from habilitation centres are shadowed)
SUPPORTINFORMAL
SYSTEMS
FORMAL
SYSTEMS
Support through
other parents
Outside
Habilitation center
Community Other medical organizationsWithin
Habilitation center
Parentorganizations Team around the child Organizational factors
A personal encounter The team has an
adjusted
intervention style Turn-overs
A flexibel environment
Empathic ability
To feel security and confidence with
professionals “the liking effect” - it feels right Professionals show interest in the family Get support that you
really want
Family needs are attended Sufficient information Get emotional support Special situation as a “new” parent To find “key-persons” A well functioning ”team” Waiting for an
answer Someone see your need Waiting for
equipment To be seen as competent
Good support from organizations