Litteraturstudien presenterar ett brett resultat av olika upplevelser som påverkar livskvaliteten negativt vid sjukdomen epilepsi. Det finns stort utbud av artiklar som beskriver hur det är att leva med sjukdomen samt om olika behandlingsformer. Författarna har inte hittat forskning som handlar om hur livskvaliteten kan förbättras hos personer som lever med epilepsi.
Författarna har inte heller hittat forskning om livskvalitet hos personer med epilepsi i norden.
Forskning om upplevd livskvalitet hos personer med epilepsi i norden hade varit givande för att identifiera hur livskvaliteten upplevs i norden. Även forskning om hur livskvalitet påverkas av kön och ålder är av betydelse eftersom flertalet artiklar har nämnt att dessa faktorer påverkar livskvaliteten. Forskning om omvårdnadsåtgärder för förbättrad livskvalitet hos personer med epilepsi är därför viktigt för att sjuksköterskor ska kunna främja hälsa, minska lindade och öka livskvaliteten för personer som lever med epilepsi.
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Referenslista
*Artiklar som är med i artikelmatrisen.
Abraham, S. & Shaju, M. (2013). Innovations in epilepsy management - an overview. Journal of Pharmacy & Pharmaceutical Sciences, 16(4), 564–576 https://doi.org/10.18433/j32k5b
*Alsaadi, T., Kassie, E.H., Khadija, S., Tarek, M., Shakra, M., Turkawi, L., Nasreddine, W.
& Raoof, M. (2017). Potential factors impacting health-related quality of life among patients with epilepsy: Results from the United Arab Emirates. Seizure, 53, 13–17.
doi:10.1016/j.seizure.2017.10.017
*Aydemir, N., Kaya, B., Yildiz, G., Öztura, I. & Baklan, B. (2016). Determinants of felt stigma in epilepsy. Epilepsy Behavior, 76–80. doi: 10.1016/j.yebeh.2016.03.008.
Cathcart, E.B. (2008). The role of the chief nursing officer in leading the practice: Lessons from the Benner tradition. Nursing Administration Quarterly, 32(2), 87–91. doi:
10.1097/01.NAQ.0000314536.91122.8b.
Crosby, R.D., Kolotkin, R.L. & Williams, G.R. (2003). Defining cklinically meaningful change in health-related quality of life. Jounal of Clinical Epidemiology, 56(5), 395-407. doi:
https://doi.org/10.1016/S0895-4356(03)00044-1
Cadden, M. & Arnett, P. (2015). Factors associated with employment status in individuals with multiple sclerosis. International Jounal of MS Care, 17(6), 284-291. doi: 10.7224/1537-2073.2014-057.
Desai, J.D. (2008). Epilepsy and cognition. Journal of Pediatric Neurosciences, 3(1), 16–
29. https://doi.org/10.4103/1817-1745.40586
*Duncan, S., Talbot, A., Sheldrick, R. & Caswell, H. (2009). Erectile function, sexual desire, and psychological well-being in men with epilepsy. Epilepsy Behavior, 351–357. doi:
10.1016/j.yebeh.2009.04.028.
21 Eriksson, K. (1989). Hälsans idé. 2 uppl. Stockholm: Norstedts Förlag AB.
Forsberg, C. & Wengström, Y. (2016). Att göra systematiska litteraturstudier. 4. uppl.
Stockholm: natur och kultur.
*Heersink, M., Kocovski, N.L., MacKenzie, M.B., Denomme, K. & Macrodimitris, S. (2015).
Social anxiety and its psychosocial impact on the lives of people with epilepsy. Epilepsy Behavior, 286–293. doi: 10.1016/j.yebeh.2015.08.003
*Jacoby, A., Snape, D., Lane, S. & Baker, G.A. (2015). Self- reported anxiety and sleep problems in people with epilepsy and their association with quality of life. Epilepsy &
Behavior, 43, 149-158. doi: 10.1016/j.yebeh.2014.09.071
Kaeberle, J. (2018). Epilepsy Disorders and Treatment Modalities. NASN School Nurse, 33(6), 342–344. doi: 10.1177/1942602X18785246.
*Kwon, O.Y. & Park, S.P. (2016). Interictal fatigue and its predictors in epilepsy patients: A case-control study. Seizure, 34, 48–53. doi: 10.1016/j.seizure.2015.12.003.
Lindholm, C., Burström, B. & Diderichsen, F. (2001). Does chronic illness cause adverse social and economic consequences among Swedes?. Scandinavian Journal of Public Health, 29(1), 63-70. https://doi.org/10.1080/14034940151107064
Lundin, A., Falkstetdt, D., Lundberg, I. & Hemmingsson, T. (2014). Unemployment and coronary heart disease among middle-aged men in Sweden: 39 243 men followed for 8 years.
Occupational & Environmental Medicine, 71(3): 183-188. https://doi.org/10.1136/oemed-2013-101721
Magiokinis, E., Sidiropoulou, K. & Diamantis, A. (2010). Hallmarks in the history of epilepsy: Epilepsy in antiquity. Epilepsi and behavior, 17(1), 103-108.
https://doi.org/10.1016/j.yebeh.2009.10.023
22
*Mahrer-Imhof, R. Jaggi, S., Bonomo, A., Hediger, H., Eggenschwiler, P., Krämer, G. &
Oberholzer, E. (2013). Quality of life in adult patients with epilepsy and their family members. Seizure, 22(2), 128–135. doi: 10.1016/j.seizure.2012.11.012.
Malter, M.P., Nass, R.D., Kaluschke, T., Fink, G.R., Burghaus, L. & Dohmen, C. (2017).
New onset status epilepticus in older patients: Clinical characteristics and outcome. Seizure, 51, 114–120. doi: 10.1016/j.seizure.2017.08.006.
*Mameniškienė, R., Guk, J. & Jatužis, D. (2017). Family and sexual life in people with epilepsy. Epilepsy Behavior, 39–44. doi: 10.1016/j.yebeh.2016.10.012.
Moshé, S. L., Perucca, E., Ryvlin, P. & Tomson, T. (2015). Epilepsy: new advances. Journal of Lancet, 385(9971), 884–898. doi: 10.1016/S0140-6736(14)60456-6 [2019-01-23]
Nair, P.P., Kalita, J. & Misra, U.K. (2011). Status epilepticus: Why, what, and how. Journal of Postgraduate Medicine, 57(3), 242–252. doi: 10.4103/0022-3859.81807.
* Norsa’adah, B., Zainab, J. & Knight, A. (2013). The quality of life of people with epilepsy at a tertiary referral centre in Malaysia. Health & Quality of Life Outcomes, 11(1), 143.
doi: 10,1186/1477-7525-11-143.
Orem, D.E. (2001). Nursing: Concepts of Practice. 6 uppl. St. Louis
Park, S.J., Rim, S.J., Kim, C.E. & Park, S. (2019). Effect of comorbid depression on health-related quality of life of patients with chronic diseases: A South Korean nationwide study.
Jounal of Psychosomatic Research, 116, 17–21 doi: 10.1016/j.jpsychores.2018.11.004.
Polit, D.F. & Beck, C.T. (2016). Nursing research: Generating and Assessing Evidence for Nursing Practice. 10 uppl. Philadelphia: Wolters Kluwer.
Saadi, A., Patenaude, B., Nirola, D.K., Deki, S., Tshering, L., Clark, S., Shaull, L., Sorets, T., Fink, G. & Mateen, F. (2016). Quality of life in epilepsy in Bhutan, Seizure, 39, 44–48. doi:
10.1016/j.seizure.2016.05.001.
23 Scott, R.A., Lhatoo, S.D. & Sander, J.W. (2001). The treatment of epilepsy in developing countries: where do we go from here?. Bulletin of the World Organization, 79(4), 344.
SFS 2010:659. Patientsäkerhetslagen. Stockholm: Socialdepartementet
Smith, N. & Tiwari, D. (2015). Epilepsy in older people. Reviews in Clinical Gerontology, 25(1), 53–59. doi: 10.1017/S0959259815000052.
Solomon, N. & McHale, K. (2012). An overview of epilepsy in children and young people.
Nursing children and young people, 24(6), 28–35.
https://doi.org/10.7748/ncyp2012.07.24.6.28.c9190
Svenska sjuksköterskeförening (2012). ICN:s Etiska kod för sjuksköterskor.
https://www.swenurse.se/globalassets/01-svensk-sjukskoterskeforening/publikationer-svensk-sjukskoterskeforening/etik-publikationer/sjukskoterskornas_etiska_kod_2017.pdf [2019-03-26].
Svensk sjuksköterskeförening (2014). Omvårdnad och god vård.
https://www.swenurse.se/globalassets/01-svensk-sjukskoterskeforening/publikationer-svensk-sjukskoterskeforening/ssf-om publikationer/om.omvardnad.och.god.vard_april_2014.pdf [2019-01-31].
Svensksjuksköterskeförening (2016). Värdegrund för omvårdnad.
https://www.swenurse.se/globalassets/01-svensk-sjukskoterskeforening/publikationer-svensk-sjukskoterskeforening/etik-publikationer/vardegrund.for.omvardnad_reviderad_2016.pdf [2019-02-01].
Taponen, S., Lehtimäki, L., Karvala, K., Luukkonen, R. & Uitti, J. (2017). Correlates of employment status in individuals with asthma: a cross-sectional survey. Journal of occupational Medicine and Toxicology, 12, 1–7. doi: 10.1186/s12995-017-0165-6.
*Tedrus, G., Sterca, G. & Pereira, R. (2017). Physical activity, stigma, and quality of life in patients with epilepsy. Epilepsy Behavior, 96–98. doi: 10.1016/j.yebeh.2017.07.039.
24 Vezzani, A., Fujinami, R.S., White, H.S, Preux, P., Blümcke, I., Sander, J. & Löscher, W.
(2016). Infections, inflammation and epilepsy. Acta Neuropathol, 131, 211–234.
doi.org/10.1007/s00401-015-1481-5
*Wang, Y.H., Haslam, M., Yu, M., Ding, J., Lu, Q & Pan, F. (2015).
Family functioning, marital quality and social support in Chinese patients with epilepsy.
Health Oual Life Outcomes, 13(10), doi: 10.1186/s12955-015-0208-6.
Welsh, R. & Kerley, S. (2009). Nursing patients with epilepsy in secondary care settings.
Nursing Standard, 23(36), 49–56. https://doi.org/10.7748/ns.23.36.49.s49
Wibecan, L., Fink, G., Tshering, L., Bruno, V., Patenaude, B., Nirola, D., Dorji, C., Dema, U., Pokhrel, D. & Mateen, F. (2018). The economic burden of epilepsy in Bhutan. Tropical Medicine & international Health, http://dx.doi.org.bibproxy.kau.se:2048/10.1111/tmi.13035
World Health Organisation (2019). WHOQOL: Measuring Quality of Life.
https://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/ [2019-01-31].
Zhang, J. & Yen, S. (2015). Physical activity, gener difference, and depressice symptoms.
Helath Services Research, 50(5), 1550-1573. https://doi.org/10.1111/1475-6773.12285 Zurita-Cruz, J.N., Manuel-Apolinar, L., Arellano-Flores, M.L., Gutierrez-Gonzalez, A., Najera-Ahumada, A.G & Cisneros-Conzález, N. (2018). Health and quality of life outcomes in impairment of quality of life in type 2 diabetes mellitus: a cross-sectional study. Health &
Quality of Life Outcomes, 16(1). doi: 10.1186/s12955-018-0906-y